The saga goes on.....

Ok this is my 3rd time writing this I best not lose it again. LOL!!!!

On Tuesday June 9th I saw my CNP Tracy.  She came in with the attitude this was going to be quick in and out, little did she know. I was/am so overwhelmed and sick of feeling aweful and fat and in pain. I was shocked I weighed exactly the same as a month earlier as I have been walking more than pt ordered. Also doing alot of cleaning that takes me 4 times as long to finish as it used to. I should have dropped at least 6-8lbs. But nope not 1 at least I did not gain I guess. At this point I was in compression socks for feet and ankles and foam leg wraps for my calves. Whoa are they ever hot. I quit wearing them on friday last week and guess what the only swelling left is my ankles. If I keep them up for awhile they go down. So in other words this hot stuff was doing nothing. Hopefully next week I will get the pump. Anyways I had an agenda and Tracy got blasted. I showed her what my bp had been which for 98% of the time it was near or over 200/between 150-180. Pulse racing most of the time even when pressure is high which it is not supposed to be. Told her I had sent it to Dr. Holcomb so she thought she was off the hook. But she wasn't  I told her that labs had to be done. She said yep already to order them. That did it I let loose. I said " Do you realize I have been sick since December 22nd? And at the hospital I was filled so full of fluid I weighed 30lbs more the day I was discharged. A week later I was back at the hospital diagnosed with broken glass looking lungs pneumonia. They debated keeping me but ended giving some pain meds there and an antibiotic. Then scripts for pain 15 pills and a heavy duty antibiotic. The pneumonia last for 4.5 months. The swelling is still happening. I have a sharp pain that goes up from the middle of my left shoulder blade to my arm all the way to my fingers. She said that is not possible and showed me a picture of nerves run. All I said is every doctor I have seen says the same things I am a conundrum and very difficult case. She was blowing me off. I then raised my voice a bit not in anger but fear. I told my dad from a massive heart attack at age 46 and died. Last year my brother had a major abdominal aneurysm that burst. They got to him fast enough than you God he is still with us. Then in April my nephew his oldest son had open heart surgery and had 6 stents put in. He is the age my dad was when he died. I am scared, very scared. That got her looking through my chart and ordered a lot more tests."They have all come back normal. The one I am going to insist they check further is my thyroid. 2 months ago it was low this time it was on the lowest normal number. I also need to call my surgeon as he is watching the 2 nodules on my thyroid and get a ct. I also need to get both wrists done for carpal tunnel. Then I need to call my neck surgeon to see if one of my discs is ready then for fusion. At this moment I am wearing a heart monitor that I take off monday evening and send back to the company and when results are back I have a phone appt with the cardioligist. I feel like I am back at square one when I first got sick. It took an entire year to diagnose my fibro. This has got to get figured out as I can not take it anymore especially this weight. Oh I am also going to call my sleep dr and get another sleep test done I had 3 or 4 years ago and I was less than 30 seconds away from having Narcolepsy. And of course if you are not diagnosed with it you can not have the medication I needed it then and now test are showing it helps with fibro 2 birds 1 stone. 

So it is still continuing. It has affected my walking. I twisted my right knee twice last friday and Saturday. I am shaky, I have a constant headache from temple to temple up to just past my hairline. I can only take a small dose of tylenol  none of the others. If I feel it quick enough I can cut it off. I have trouble with my balance. I am at the end of my rope and want answers and solutions.