Support Group
I went to the Parkinson's Support Group this week. My husband didn't go, but there was a Motion Disorder Specialist as the guest speaker so I thought I would see what he had to say. He described the new medications that are being studied, so it was interesting. Some drugs are in Phase 3 and if that passes then the next step is the market. He also talked about Gene studies, the pump and patches.
It was an interesting night and I also talked to a guy that has had the surguery where the inplanted a thing which helps control this tremors. He was really switching but after the inplant, he is much better and has a better quality of life. He's having a little problem walking but he doesn't know if it's from that operation.
My husband drove for an hour yesterday and his eyes didn't bother him, so that was good. I drove back home. He gets his next botox injections in a couple of weeks.
It was an interesting night and I also talked to a guy that has had the surguery where the inplanted a thing which helps control this tremors. He was really switching but after the inplant, he is much better and has a better quality of life. He's having a little problem walking but he doesn't know if it's from that operation.
My husband drove for an hour yesterday and his eyes didn't bother him, so that was good. I drove back home. He gets his next botox injections in a couple of weeks.
Replies
I really wish there was some type of support group close to us. I think talking to other caregivers would be very helpful. Driving is one of the things my hubby has had to give up. I think it is just one more thing that they lose control of as PD progresses. I hope the botox injections help him. Thinking of you and hoping you are having a good weekend. Hugs
my husband has PD and dementia with lewy bodies, He is in a nursing home. I use to go to a caregiver group. it helped me a lot. hope you are having a great day.