Still waiting!

Well yesterday  evening I went to the GP,managed to get a cncellation slot thankfully as was going roung twist with bones and headache. Within seconds of getting in I turned into a blubbing wreck.....think i'd just reached the end of my pretty long tether and it had to come out....... I had gone to get different pain killers and he gave me on co-dydramol ( so far just as pants as everything else!) . Anyway as I proceeded to break down I said "perhaps you'd  better look at the screen for my last few visits and you'll see whats up"  so he did and as we talked I asked if he'd any experience with acromegaly as it turns out he does with post surgical patients on meds so at least that's encouraging if I do test positive.  Still had the overall impression that he thought I was not a very likely candidate........Why is is that when you mention this rare disease they look at you as if you have horns!!!!  Seeing as humans are all very individual beings why is it I must  look like  to an image from an  medical text book of yesteryear.......from what i've seen most images depict persons with advanced disease...... For me I've got enough going on in my body, plus some appearance changes to warrant investigation..... I  said  to him theres not enough time in a consultation to have sat there before and rattled off every sign or symptom that now in hindsight could be linked to this, ........Dear DR my voice seems to have broken.......my belly really sticks out...........sometimes I slur my words.......my earlobes seem big and squidgy.......i think my toes are getting fat ....lol .... i have a belting crease between my eyebrows and on the subject of those why don't they sit right anymore, I look pretty angry sometimes........lol the list is seemingly endless or maybe I am just vain, cept I hate mirrors ;)Gosh am enjoying rambling on here.......anyway upshot was I needed to vent all that stress yesterday and toay although I have bone pain and a slight headache I do not feel doolally any more .........mentioned to GP that i've never experienced moodswings like this despite taking antidepressants half my life........and today is a decent swing for first time in weeks

Replies

J0KEYJ
J0KEYJ

Im so sorry so many can relate to the frustratation...some members know that I got to a point of chaining myself to the doctors chair....I sat there and said I will not be moved...Ten years of hell my symptoms some different to the other members because this conditon plays some nasty tricks ....A simple blood test....I wont take over your journal but Im so annoyed although there is more awareness out there like now anyone at my doctors as theres only myself Ive opened the door big hugs to you keep at them and its good to vent..A few members and friends know to duck because I throw a right rattle and I feel a bit better also...Biggest of hugs and hope you find out soon ...JJ
JeriTX
JeriTX

I\'m so sorry you have been dealing with all this, but maybe your meltdown was exactly what you needed to do. The fact is they have dropped the ball, and you needed to let them know the whole load. I loved your comment about horns. Ironically, that is one of the few things we HAVEN\'T complained about growing! I know it is rare, which I assume is why they blow it off at first. However, if they look at ALL your symptoms, it is still very possible. Keep up the fight until they can give you some useful answers. In the meantime, try to get some rest and take care of yourself.