Started Revlimid
Started Revlimid last night. I will be taking 5mg every other day to begin with and slowly as I tolerate the medication, the doctors will increase my dosage. Fingers crossed!
I am still feeling great...can I say that without jinxing it?lol I mean, of course when my hg is low I am tired but I am still able to live my life normally at this point. I did receive 2 units last Friday because my hg was so low. It's a bit of a bummer when you hear that your day is going to be spent at the infusion center but spending the day at the infusion center is much better than the alternative, right!
I was wondering how others are feeling? Physically but emotionally as well. I have heard my friends or other people who are sick with different illnesses speak and they all speak about feeling angry when they were first diagnosed and feeling sorry for themselves--I have never felt angry (although I did throw myself a three day pity party!) I feel as though, okay, I am still me but now I have to deal with this. I keep waiting to be angry or to ask why me but it hasn't happened yet. I feel very optimistic and I just know that I am going to kick the a$$ of MDS.
Lastly, my little brother sent in his kit to see of he is a bone marrow match for me. Please send prayers, and vibes, or whatever other positivity my way. It means so much to my little brother to be my match that I want this more for him than even myself! lol. Is that crazy?!
I am still feeling great...can I say that without jinxing it?lol I mean, of course when my hg is low I am tired but I am still able to live my life normally at this point. I did receive 2 units last Friday because my hg was so low. It's a bit of a bummer when you hear that your day is going to be spent at the infusion center but spending the day at the infusion center is much better than the alternative, right!
I was wondering how others are feeling? Physically but emotionally as well. I have heard my friends or other people who are sick with different illnesses speak and they all speak about feeling angry when they were first diagnosed and feeling sorry for themselves--I have never felt angry (although I did throw myself a three day pity party!) I feel as though, okay, I am still me but now I have to deal with this. I keep waiting to be angry or to ask why me but it hasn't happened yet. I feel very optimistic and I just know that I am going to kick the a$$ of MDS.
Lastly, my little brother sent in his kit to see of he is a bone marrow match for me. Please send prayers, and vibes, or whatever other positivity my way. It means so much to my little brother to be my match that I want this more for him than even myself! lol. Is that crazy?!
Replies
Thats so cool Jeanine... you have such positive vibes already! Because I seem to be in an early sort of stage it is hard to know what to feel. My BMT is always hanging over my head... and I know my platelets are down because I am having lots of bruising lately and red dots on my legs. Hate this in-between phase! And I had enough of being tired. Well thats it for me. But I still push on. Glad u are too. True inspiration! Hope it all goes awesomely... luv Jules