some update and stuff...
saw my PCM today ...EARLY ass in the morning! had to be there by 0830! so i woke up at 0630!! that's the earliest i've had to get up in years.... and i gotta tell you.... i was d-r-a-g-g-i-n and the back pain was unberable! my pain went all the way up to a 7 on the pain scale. i was walkin SUPER s--l--o--w--..... inch by inch holding on to Matthew. old people with walkers were passin me up like i wasn't even moving. sheesh.... anyways... this is what i saw her for today:-get an updated MRI of my lower back (that's been killin me!) -ask to get switched from gabapentin to topamax (gabapentin has numbed me out in bad ways)-ask to be switched from cymbalta to savella, the newly aproved med for FMS. i mean cymbalta has greatly helped my migraines, but the body aches, muscle pain, and muscle fatigue has not improved much. so i wanna try savella. heard so many good things about it.-asked to get sent to a podiatrist because my feet been hurtin from the plantar fasceitus. i used to have molds for my feet back in 05, but those are worn out. need new ones.-had my vit B12 levels checked (lab)-and asked for an annual eye exam wewhh! that's a lot, huh?matthew drove me this morning cuz i was in BAD shape, he was tempted to take me to the ER. i told em, no, cuz i don't wanna deal with those asshole docs. last time the female doc made a comment "she just has fibromyalgia, so i'll have her out of here pretty fast".....WTF?!!! "JUST fibromyalgia"??! if that b*tch got this shit, she would probably thow herself off a building from the pain! anyways.... Matthew and i have has some deep talks lately. we had gotten into a bit of a spat (that he started then blamed me), but we talked it over thoroughly and resolved it. i told him that i understand he is struggling with depression and all that, but that's NO excuse to talk to me that way or treat me that way. it's abusive. so he got really quiet and kept looking down at the floor.... i told him that i'm not innocent either, that i've said mean hurtful things in the past too. but that we NEED to STOP that. we deserve better and shouldn't hurt each other. so he said he was sorry and was sincere... he said he's sorry he ever hurt me and in the past too. we talked for a long time about the past 3 years of our relationship and how we have made so much improvents. i agreed with him and told him how much i love him. i told himt that i don't want anyone else... no one else can match up with me. i've never felt so deep about anyone before.... we held each other the rest of the night and he kept hugging me and kissing me. he can make me so happy sometimes. also, he makes me laugh so hard most days.... i mean, till my stomach is cramping and my asthma flares. that's how hard he makes me laugh! ok... i'm wrapping up here. thanks my friends for taking the time out of your day to read my update. you are so supportive and i'm glad i have you!! thanks to all those who pray for this nation! and i pray that this economy turns around soon.... God bless you all!!
Replies
Hi Blue! Colleen feels the same way about me, and I about her. It isn\'t so easy to put up with a crusty old jarhead I guess, but it is never her. I just get pissed off at what I see om the news, stuff like that, and all the sudden I\'m a grunt again! Ha! But I am sweet to her...well she says so. And I met my match, she can have a head like iron sometimes! Ha! so we deserve each other. Glad you got off Gabapentin. It can play Hell with your liver. And we hope your pain lessens, dear friend. I WILL tell you this: I have been an ER supervisor and a hospital supe as well. If I EVER heard anyone talking like that, they\'d get a deep reaming from me! There is NO SUCH THING AS \"Just\" in any ER. I remember a young doc we had in ER. We had a guy come in with chest pain complaints. I heard that doc say \"Oh, well, it\'s just anxiety, I\'ll give him a little Ativan and get rid of him.\" I lit into that doc (a hospital supervisor can ream out anyone) and had him well nigh in tears. Turned out the man DID have a heart attack. Best to you and Matthew and Semper Fi! Wally
add on:
i just got a phone call back from the doc about one of my labs. i came up really positive for another infection. she thinks it\'s what may be causing the extra back pain (kidney). i\'ve had SO MANY kidney infections i can\'t even count and majority of the time i have no symptoms or warnings. just a bit more achey.....great, huh?
WHY do the drs do that nursees to. Its JUST fibro. I told one \"try it , you might like it\"! I am getting in a habit of wearing my daughters maternity top when I go to the docs, it isnt that big BUT it says GO AHEAD HORMONAL MOMENT HERE!!!! Be surprised how nice they can be.
Hope the doc can get you sorted out - that\'s a LOT going on. \"Just fibro\" huh? Yeah right - like \"just\" a nuclear explosion. I\'m so happy you\'re working things out with Matthew - I was worried about his abusive-type behavior but it sounds like you two have something real and you\'re willing to work on yourselves as well as your relationship. It\'s really signficant that you both are willing to say you\'re wrong and talk openly about past mistakes without judging - just learning from them. That\'s a strategy that has good potential IMHO.
I can\'t stand it when docs & nurses say, \"it\'s just fibro!\" If they had it, they wouldn\'t be able to handle it! Sorry to hear about your kidney infection. I know how you feel, though. I\'m headed to the doc tomorrow and hopefully, will get some answers....or not. I\'m so happy that you and Matthew are getting closer. You guys are a great couple and you\'re so lucky to have each other. I\'m so lucky to have you, too! LOL.....Anyway, you are a wonderful person and deserve only the best! And anybody who says differently, can go jump of a short cliff! Love ya!
Yeah I hate it when you go to the hospital for anything, once you tell them you have fibro. they just think you want pain meds and dont really check to see what is wrong. It makes me sooooo angry!!!!!!! Hope you feel better soon from the kidney infection. Those things are not fun :-(
hope you are feeling better, yeah those docs suck!!!! maybe if they took us seriously and tired to understand our pain...they get paid the big bucks..they need to research the disease and not dismiss us!!!!
hugzz to you!
I\'m so glad to hear you sounding so happy and positive...... it\'s great that you and Matthew have been able to sit down and talk through everything.
I hope that your infection gets fixed up quickly, that sucks, no warning just more pain. At least your doc has run a heap of tests, hopefully you\'ll get the treatments you need. Keep smiling my friend. xo
er doctors can be pretty bitchy ..... and they never understand that pain ...... but i hope that you are feeling better .....