So tired of pain

Not feeling well this week. Lots of kidney and chest pain. Obviously I have some enlarged cyst again. It’s been 8 months since I have had any drained.

Replies

Bluespark
Bluespark

Hi Smoore39,

I’m new to this support group and looking to connect with other people with PKD. Have your doctor mentioned Tolvaptan? If you have heard of it, I welcome any input or thoughts on taking it. I’m deciding if I should try it or not. I get mixed opinions from family and friends.

Hope you’re feeling better today.