Slowly getting better
Well I got through the week, but the weekend was hard. It was upsetting to lose what little independance I had. I wanted the doc's to give me steriods to continu my rehab, in part that was true but losing my ability to move and do things for myself was the hardest part. I got 500 mg once day for two days,it took seveal days but it worked. I can move again
I did not do physio last week, because of the weakness. Today was my first day back doing physio. It is amazing how quickly you lose muscle. Before the steriods wore off I asked if I could add 2 min's to my time on the bike. Today I managed the ten min's but it was really hard. My leg exercises are very hard to do and I can not do them all at once. I am very tired.
Today when getting washed up my nurse thought it might be from the amount of things I am now doing for myself. I have been very independant the last couple of weeks.
I help most days to wash my upper body, pari care, powder, DO. I turn myself now in bed without any help at all. I help put on my clothes-they help only with bra and bottems when I turn. During the day I can now get my lap top myself, hold my book, crochet. I tidy my room, put things in the garbage etc. I wash my hair daily. Best of all I feed myself they bring in the tray and open everything, cut up the meat.
I talked to the socialworker yesterday and it looks like I can go home, in time. Of course I want to go today but I know there are things I need to work on. But I will make it, I know they need to get a celling lift in our place, and I need to get a bed the same kind that I am using here so I do not get presure sores. I got a mark on the back of my leg now but it is not open, just a bit pink, but we are looking after it. So I think he spring is a time to shoot for.
I have to make sure I do not end up in the same rut. I did nothing, I did not go out, see any friends. I did not leave the couch, did not get dressed. All I did was watch tv and read. I did not even use the pc.
It is hard to explain. I was so tired, I did not have the right equipment. It was too hard to remove pants when I used the comode so I stayed in my jammy's. Even getting into my wheelchair was too much work, so I did nothing. I did not have the help I needed either. Now on days that I am tired I feel 10X's better then I did back then.
I did not do physio last week, because of the weakness. Today was my first day back doing physio. It is amazing how quickly you lose muscle. Before the steriods wore off I asked if I could add 2 min's to my time on the bike. Today I managed the ten min's but it was really hard. My leg exercises are very hard to do and I can not do them all at once. I am very tired.
Today when getting washed up my nurse thought it might be from the amount of things I am now doing for myself. I have been very independant the last couple of weeks.
I help most days to wash my upper body, pari care, powder, DO. I turn myself now in bed without any help at all. I help put on my clothes-they help only with bra and bottems when I turn. During the day I can now get my lap top myself, hold my book, crochet. I tidy my room, put things in the garbage etc. I wash my hair daily. Best of all I feed myself they bring in the tray and open everything, cut up the meat.
I talked to the socialworker yesterday and it looks like I can go home, in time. Of course I want to go today but I know there are things I need to work on. But I will make it, I know they need to get a celling lift in our place, and I need to get a bed the same kind that I am using here so I do not get presure sores. I got a mark on the back of my leg now but it is not open, just a bit pink, but we are looking after it. So I think he spring is a time to shoot for.
I have to make sure I do not end up in the same rut. I did nothing, I did not go out, see any friends. I did not leave the couch, did not get dressed. All I did was watch tv and read. I did not even use the pc.
It is hard to explain. I was so tired, I did not have the right equipment. It was too hard to remove pants when I used the comode so I stayed in my jammy's. Even getting into my wheelchair was too much work, so I did nothing. I did not have the help I needed either. Now on days that I am tired I feel 10X's better then I did back then.
Replies
good that you got through the week and so glad you are on the mend again and still on schedule to go home, with me in those days steroids absolutely helped me with mobility as well!
good that you jumped on the bike again, blood circulation through is body can make such a difference. back then pressure sours was something I almost immediately got, they say being moved every hour should be the minimum. here\'s some info on the science behind why if your interested http://www.youtube.com/watch?v=3SJ9AZihQ0E
when I contracted ms, I was in Africa at the time and not well enough to make the journey home, the African nurses were scary but great, they had arms as big as their legs and threw me around like a rag doll, I always did what I was told, no questions asked, at times I felt violated. ha-ha
a ceiling lift and bed at home sounds sound like a godsend, being at home will be such a better atmosphere for you health and wellbeing, also for your wheel chair, gel filled cushions are good against pressure sores.
the rut you were in before, yes hard to explain unless one has been through it themselves, when I was in a similar rut holding a a conversation for more than five minutes would cause complete exhaustion. sounds like neither one of us are going to return to that place, good onya mate.
Love hearing your progress and keep up the great work!
Richard