Sleepless Nights

My daughter has recently had a G-tube placed in her belly.  At first the doctor told me she would only need it for continuous feedings throughout the night, it wouldn't be needed in the day time I was to just bottle feed as usual.  However, it's been 3 weeks since the surgery and she has not only rejected the bottle most feeding, she is not longer sleeping through the night.  She is required to intake a certain volume of formula per day which without the tube feedings she wouldn't even come close.  I am now having to tube feed her every 3 hours limiting my ability to leave the house everyday.  I feel trapped and frustrated.  My life revolves around her feedings and no sleep.  I know I can't continue like this. 

Replies

october2014
october2014

This sounds like a difficult situation indeed. I know yours isn\'t a hospice situation, but I\'ve heard that some hospice organizations have respite caregivers for situations similar to yours. Do you have a hospice group near you that you can talk to about getting some time off?