Sleepless Nights
My daughter has recently had a G-tube placed in her belly. At first the doctor told me she would only need it for continuous feedings throughout the night, it wouldn't be needed in the day time I was to just bottle feed as usual. However, it's been 3 weeks since the surgery and she has not only rejected the bottle most feeding, she is not longer sleeping through the night. She is required to intake a certain volume of formula per day which without the tube feedings she wouldn't even come close. I am now having to tube feed her every 3 hours limiting my ability to leave the house everyday. I feel trapped and frustrated. My life revolves around her feedings and no sleep. I know I can't continue like this.
Replies
This sounds like a difficult situation indeed. I know yours isn\'t a hospice situation, but I\'ve heard that some hospice organizations have respite caregivers for situations similar to yours. Do you have a hospice group near you that you can talk to about getting some time off?