Shocked
I'm a 44 year old woman newly diagnosed with secondary Addison disease due to nonfunctional pituitary tumor. I have been seeing an endocrinologist for hypothyroidism. I have not had a period in 11 months so she ordered blood work, and I received a voicemail saying my fsh was 1 and estrogen 18,she wanted me to get an MRI of my brain because she suspected tumor of pituitary!Got it done and she was right!small tumor and deviated stalk!more blood work,morning blood cortisol was 3.1 and my acth was normal, she said I have adrenal insufficiency from it,she prescribed hydrocortisone tablets,and said I have to wear medic bracelet!im a nervous wreck!im on suboxone and have been for 5years ,I was prescribed pain pills for a long time and got sick trying to go off them,now I'm scared of them taking me off suboxone,I've tried and it's inhumane!!!paws!!anyone out there
Help
Replies
Hi there.Di here. The good thing Tristan, is that you have a diagnosis, despite it not being great news. However at least you know why you're feeling so ill. If you are able to stay on the low dose 20 mg of hydrocortisone and not have to increase it, that will be good. I'm not familiar with suboxone but will check it out. Try to stay calm and as positive as possible. I know it's not easy. I struggle with doing so myself. The hydrocortisone should start to give you some extra stamina in your body. It definitely helped me and I was so disappointed that my heart doctor took me off it. Hang in there. Just one step at a time. Make lots of new friends here on DS. It does help to give you more strength and perseverance ,when you reveal your suffering to others in similar situations. It's more difficult to try and cope alone. Stronger in numbers as they say. Hugs to you, Di