screaming inside

i am absolutely begging for someone to chat with me......someone that i don't know and they don't know me, but has HH.
fear keeps me from going to the er.  the dr's that i have been too are cold hearted or they chose to use stupidity as an excuse not to treat some ppl.
i am in excruciating pain but the response from the er over the 11 yrs has taught me that they won't help me.  i have no money, no insurance and no where to turn....why won't anyone help me?  sometimes you just need a shoulder to cry on.....i have no one.

Replies

NicolaToms
NicolaToms

You arent alone honey.I know just how you feel.I too have HH, doctors have stopped my phlebs coz they are doing so many tests on me. Was told I was depresssed and they tried to fob me off with anti depressants. Have constant pain, cant breathe, am on oxygen 14 hrs a day. I shake, tremble and now feeling constantly nauseus.Have you really shouted at your drs. As a human being you are entitled to treatment and consideration. You say you have children, could they help you financially?. Please dont give up you are worth so much more than that. I dont know where you live but does anyone else on this site live near you that you could talk to them and find out where they get treated. HH does make you down and I so feel for you. Nic. X
deleted_user
deleted_user

Hi, I understand!!!! Hang in there! High IRON caused anxiety, depression, fatigue....I honestly was suicidal for a while. My levels are good now and I am so much better. It is not in your head...it is HH and HANG IN THERE and you will see the light. I do believe we need to eat extra healthy and take the right supplements to help us along. My advise...make sure you have sublingual b-12. b-12 deficiency causes depression and fatigue. Just do your phlebs and don\'t worry about insurance!!!! Your diet and nutrition will help and I will pass along anything I am learning to you. I have learned that I was deficient in D3 which led to jiont pain. I also need magnesium.
scaredofdrs
scaredofdrs

thnx guys....i wish it was that simple, but 11 yrs of \"trying\" has gotten me no where. i am seeing a dr who prescribes me valium but all of the knowledge that she has about HH has come from me. she had never heard of HH before. my bp runs extremely low as well and that doesn\'t seem to concern her. am going to see her this am for a refill, that\'s only a bandaid, but i\'ll take it.