Sad and confused
Hello everyone, I'm new to this board and thought it might be a good place to talk with others who may be going through or have gone through what I am going through in regards to their Grave's Disease....
I was diagnosed with mild grave's disease in 2007 and was put on PTU. I started to feel better after about 6 weeks and remained well until now. I just went to the doctor and explained I was having the same type of symptoms I had three years ago before the PTU. My symptoms include extreme anxiety fatigue, nervousness, mood swings, muscle aches, heat intolerance (feels like I'm burning up on the inside), increased sweating, increased bowel movements, eye irritation and frequent wakings at night. The best way I can describe how I have been feeling most of the time is that I feel really reved up or wired, but yet wiped out at the same time. My TSH this last test was .30 and my doctor said I was stable and to keep doing what I'm doing. I couldn't believe it because I am not feeling well at all and I can't take much more of this!!!! I took it upon myself to increase my PTU to three times a day instead of two. I used to be on three, but I was slowly weaning off. I told the nurse this, and she didn't say anything about me increasing the dosage. I have an appointment on friday with my doctor and would love some advice on what I should ask my doctor. I see a regular internal medical doctor. I think it's time I see an endocrinologist. Any suggestions on what I should do? I'm at my wits end and I just don't know what to do anymore. I feel like I'm always brushed off, my doctor always says, well you are just borderline, your symptoms shouldn't be so bad, and it's not bad enough for RAI or surgery. I guess my main question is if it is possible that some people need RAI even if their condition is considered borderline? Sad and confused:(
I was diagnosed with mild grave's disease in 2007 and was put on PTU. I started to feel better after about 6 weeks and remained well until now. I just went to the doctor and explained I was having the same type of symptoms I had three years ago before the PTU. My symptoms include extreme anxiety fatigue, nervousness, mood swings, muscle aches, heat intolerance (feels like I'm burning up on the inside), increased sweating, increased bowel movements, eye irritation and frequent wakings at night. The best way I can describe how I have been feeling most of the time is that I feel really reved up or wired, but yet wiped out at the same time. My TSH this last test was .30 and my doctor said I was stable and to keep doing what I'm doing. I couldn't believe it because I am not feeling well at all and I can't take much more of this!!!! I took it upon myself to increase my PTU to three times a day instead of two. I used to be on three, but I was slowly weaning off. I told the nurse this, and she didn't say anything about me increasing the dosage. I have an appointment on friday with my doctor and would love some advice on what I should ask my doctor. I see a regular internal medical doctor. I think it's time I see an endocrinologist. Any suggestions on what I should do? I'm at my wits end and I just don't know what to do anymore. I feel like I'm always brushed off, my doctor always says, well you are just borderline, your symptoms shouldn't be so bad, and it's not bad enough for RAI or surgery. I guess my main question is if it is possible that some people need RAI even if their condition is considered borderline? Sad and confused:(
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