resent visit to new gastroenterologist
Hi everybody, this is my first journal entry. I hope what I have to share can help or give me some advise.
I am a 54 year old female, and have had hep c for 35+ years. Geno type 1A. 1st round tx, May this year, but was only able to complete 5 weeks due to low cbc's.
My visit this week was with a Dr. at IU Med Center who has studied and specializes in hep c. His plan is to start me on a clinical trial, as soon as the drug that is most compatible to my gene type comes available. Unfortunately, the drug coming out in the spring will not be a right match and to just put me on it to see would only lower my tolerance for the proper match. Could be 5 years away but there are other options in the works. He said there is a test you can take to see if you are compatible with Pegasys, etc. It's $300.00. Sorry I don't know the name of the test. Has anybody else been told this ?
He also said I need to stop smoking herb (bummer) because new findings have shown to be more damaging than recently thought, to a person with hep c.
Thanks to all for all the helpful info I have read on this sight and my prayers and
best wishes for good health and happiness.
Peace & Love
I am a 54 year old female, and have had hep c for 35+ years. Geno type 1A. 1st round tx, May this year, but was only able to complete 5 weeks due to low cbc's.
My visit this week was with a Dr. at IU Med Center who has studied and specializes in hep c. His plan is to start me on a clinical trial, as soon as the drug that is most compatible to my gene type comes available. Unfortunately, the drug coming out in the spring will not be a right match and to just put me on it to see would only lower my tolerance for the proper match. Could be 5 years away but there are other options in the works. He said there is a test you can take to see if you are compatible with Pegasys, etc. It's $300.00. Sorry I don't know the name of the test. Has anybody else been told this ?
He also said I need to stop smoking herb (bummer) because new findings have shown to be more damaging than recently thought, to a person with hep c.
Thanks to all for all the helpful info I have read on this sight and my prayers and
best wishes for good health and happiness.
Peace & Love
Replies
Yes...have heard of the test... alot of docs are just now getting acquainted with this .......check it out
http://hepatitiscnewdrugs.blogspot.com/2011/02/preparing-for-hepatitis-c-treatment.html?spref=fb
Thanks for the info. Now, this gives me another reason for not waiting and to just go on and try the tx.
@ ladystarrr--you are always so helpful with your sites, thanks.
BethAnn, I\'ll be looking for you at the clinic: I go there myself. :) Didn\'t realize the herb was so awful. I don\'t don\'t toke up nearly as much as I used to but sometimes the I just have to have it. It seems to help with the bad muscular/joint pain that I have. That was what sent me to the doc in the first place 3 yrs ago. They did the same test on me and found out I am compatible so now I\'m just waiting on the stupid class I\'ve been told I have to take. Stay chilled and I\'ll be thinking of you.
Hi there. I also am starting a clinical for Gilead. Peg/Reb/GS-5885/GS-9451. Regarding the test are y\'all talking about the IL28B genetic test? Took the test and said I was not compatible for the triple therapy - so clinical it is.....
Hi there. I also am starting a clinical for Gilead. Peg/Reb/GS-5885/GS-9451. Regarding the test are y\'all talking about the IL28B genetic test? Took the test and said I was not compatible for the triple therapy - so clinical it is.....