RESCHEDULE & Hell Breaks
Well, sick kid, had to re-set apptmt with Neuro till next Wed. Did ask he review 2007 MRI to see if lesion was on T1 as he had stated but not notated. Now have a benign hemigioma on T11.One of my NP (non-profits) hit the fan. My fault. I forgot that I have auto-signature on all emails with that org's name and it was a political information email with a link which didn't say to vote for or not vote for but since it was "political information" all Hell broke loose. Oh, goody. So I've wasted my day dealing with the aftermath of that stating that I apologize, wrote retraction stating it was my PERSONAL opinion, etc. just trying to keep all informed before the election. I mean, how else can you make an intelligent vote if you don't know ALL the facts? I need to go back to my friend and get that link as heck if I have it now. Here we go: http://www.youtube.com/watch?v=anieuWFWe8s If you don't know, yes, I am an avid PRO-LIFER as if it weren't for two wonderful loving caring women, I wouldn't have my family or my gorgeous grandchild! Anyway, I'm going to paint my kitchen. Kid is well enough now that I feel safe to get dirty with paint and not be needed. Pain is thru the roof and beyond. Bad weather, windy, the Hell mess, and etc. Oh, great....just found out that I'm dressed to paint and have to run downtown ASAP for meds for another child of mine and get a lay-a-way for another child. Oh, well, Grunge is still in style, right???? ROFLOL
Replies
Hey, dear. I\'m so sorry to hear things aren\'t going very well. :(
KAnne, you my dear, are a doll, a diamond, a very precious person. I know you suffer, and God knows my heart aches for you and what you go thru. But sweetie, stay sweet. Don\'t let life and some of what comes with it make you hard, uncaring and blind. To many are willing to keep the peace at all cost. I am not as obviously stated above. I just am shocked that in the US where we are SUPPOSED to have freedom of speech, etc. that what we really mean is \"you\'re free to speak as long as I agree.\" I send you my love & hugs, keep your lovely chin up and your face towards the sunshine. Smile, be happy.
I have nothing but admiration for your energy throughout all your trials and tribulations. Don\'t quite understand the medical lingo but nonetheless, it does not sound good. Actually, it sounds rather serious. You remind me of that email that comes around once in a while. It\'s about Choices and how we all have them. We can choose to wake up happy or we can choose to be miserable. We can choose to fight or we can choose to give in. You keep making the right choices (except for the political signature, lol which caused such a broohaha). You are an inspiration to many. Go ahead and paint. It\'ll keep your mind busy.
I\'m so sorry you had to deal with that.You\'re right we no longer have freedom of speech in our country anymore.It\'s sad!I\'ll have you in my prayers Wed when you go in for the appointment.Take care of you my friend.BIG hug for you...Lesa
LIANE - Yes, if one can stick foot in mouth up to hip, it would be me! ROFLOL I still say, kiss this, as I\'m entitled to my opinion and if I could line \'em all up and be in their face nose to nose stating my opinion. I know you are like soooooo shocked! ROFLOL
My energy is \"red eye\". A pot of Columbian Coffee mixed with a pot of Espresso. OOOOOO! Hello Caffine! LOL That plus God\'s got a job list and a half for me to do and I must be busy. One lifetime is not enough that is for sure.
Now the kitchen painting, is hysterical. Hubby knew as I\'d talked forever about painting. Now he keeps asking, \"Are you going to leave it that color?\" NO, BABY! JUST WHAT\'S ALREADY PAINTED FRESHLY! DUH! Of course I\'m leaving it that color! SHEEZ! If he had a brain he\'d take it out and play with it! It\'s not like I did it in neon orange and lime green polka dots! ROFLOL But, hey, that\'s an idea, right? ROFLOL
Admittedly, it\'s bright. My mom refers to me as her \"flower child\" because of my color preferences. ROFLOL
Medically, if I\'m right, I\'m screwed. Oh, not like I wasn\'t before, LOL, just another \"title\" I can slap on my med records. ROFLOL
Hugs.
Dear LESA - HI LOVE! Well, freedom or no, I\'ll keep spouting. Hey, they can\'t fire me as I\'m a volunteer. They can\'t dock my pay as I\'m a volunteer.
However, I\'ve an ace up my sleeve and come November, I\'ll just be plain ole me and getting off certain Boards, maybe.
Just think, if it weren\'t for me, the bureacrats would die of boredom! ROFLOL I do public relations and grant writing so I can always swear the Dr changed my meds, right? ROFLOL
Love & hugs
I hate the iea that we are supposed to always be politically correct and tolerant...when is someone going to be tolerant about what I think and believe! You keep on pounding that right to life message out, so many people are so unaware that stem cell research has accomplished nothing in the last 20 years while adult stem cells have done amazing things ...and no one dies! I am proud of you for speaking out!
Amen.
Nan
YOU just scared the H...E....double tooth picks out of KoKo..... He just isn\'t use to me gufffaaawwwwwing out loud here all by myself. But oh my (wipe tears to see to type, laughing tears)I can just get this picture of you with hip joint exiting mouth while hubby stands by idly playing with his brain............wish I was a cartoon artist, it would be amazing!!! Love ya, girlfriend, keep those chins up, and you know I\'m prayin\'!
NAN - I never go down without a fight. ROFLOL So, since the email fiasco, I just put it on another website and did it under an alias. TA DA, and KISS THIS! IRISH TERROR LIVES! ROFLOL Oh, yeah, it raised Hell there too but, again, kiss this.
CAROL - Do start poor KoKo on Dimetapp or Valium as is necessary. Can\'t have a freaked out bird screaming and doing cartwheels in his cage. Not kosher! ROFLOL Love to you! Oh, and I AM FINE. I DON\'T HAVE NF1 or nothing else exciting. I \"officially\" have SEVERE (shock!!) FIBROMYALGIA AND PROXYSMAL DYSKENSIA. New med to try to regulate brain chemicals to stop/subside jerking. Some anti-convulsant thingy. After this, if it doesn\'t help, I will no longer see my neuro. Love the man to death, but hey, no point in paying major $$$ on a bod that is shot so badly the med schools would take the corpse! ROFLOL