Painful

It`s getting harder to get going in the morning . I have been in so much pain lately ,it makes it hard to do anything .Have a hard time concertrating on anything .I want to particapate in so many things but just can`t get motivated because it hurts to move .My wife told me the other day that I am not judging my pain level very well when I go to the doc .She said that she knows this by reading what the doc has put into my activity sheet that I bring home from the doc`s office .I used to fill out their pain chart that goes from 1 thru 10 ,you know where is you pain level today .Well I would have to put it at about a 7 or 8 but the nurse would always say something like if your are in that much pain you should be in the hospital or in the least you should be in a wheel chair . They don`t understand that I consider myself as strong as a bull .I mean I was thrown out of a moving vehicle at 60 mph and lived,yeah I know I didn`t walk away from it but I went from the hospital to home long before the doc`s thought I would .I did spend the next 2 years in one rehab thearpy after another just so I could go back to work (my choice).The reason I say that is because all 5 of the doc`s I had at the time said that I would never be able to go back to work in any capacity ,but I did .Granted I was in a lot of pain from the fracture in my back and the bulging discs .But I worked through the pain and finally did go back to work ,doing the same job that I had when I had the accident .And then I went to work for the Postal service and blew out my right knee three times and tore up all the tendons in my right wrist . So I am no stranger to pain ,I just think I can`t gauge it anymore . If I tell them how much pain I am in then they look at me like I am crazy or that I am just making it up .So what can I do but tell them it`s not that bad . It`s not right but what can I do .I don`t like taking all the drugs that they thik I have to have .They make me feel like a zombie or that my brain is in a fog all the time .I have had shots that are suposed to relieve pain but they don`t even come close to helping .I have a tens unit and a stem unit that I used to wear all the time trying to get some relief but all it did was shock me and make me feel like a jumping jack from all the jolting . Everyone tells me I need to go to a chiropractor but I haven`t been since I was diagnosed because my doc said not to (it causes more damage) .I have thought about acupuncture but haven`t done it because of cost and the insurance dosen`t cover it .I have been seeing a pain specalist and getting steroid injections but they haven`t done any good .I have asked him about me going back on Cymbalta but he says that the insurance company will only allow it if I am having depression , so he won`t do it .I was on it before but under a different insurance and it was considered for neurologic pain ,why dose one insurance allow it but another won`t ? My wife said it improved my attitude but that is not enough for the insurance company .I have a NS and he just is there in case something goes wrong with the shunt or if the 3 syrnx`s get larger (what he would do if they get larger I haven`t a clue) but that is why I spent all this time trying to find one that would even talk to me about it .
I know there is not much that can be done for SM .But come on ,give me a brake .Need something ,my symptoms are getting worse but I look fine .Right now my right hand is numb and my left is on fire , my back is killing me to sit or stand and laying down dosen`t help either .I`m weak and tired because I didn`t get much sleep last night ,or foe that matter haven`t gotten much sleep in the last couple of months .Haven`t slept through the night in years ,I usually go to bed at 11:00 and can`t stay in bed for more than an hour or 2 at the most then I have to get up move around for 10 to 15 minutes then go sit in a chair the rest of the night .I have lately been just trying to sleep either on the sofa or in my recliner ,with little or no sucess .Makes the days drag and the nights even longer .