One week later
The new Rhuemoltogists put me on 15mg of Methotrate once a week. I can walk again. I can hold a fork and spoon. My husband only has to put eye drops in my eyes in the morning and help me out of bed. I can walk again. I have half the pain now. My Rhuem. doctor gave us some bloodwork paprers and we took it to one lab they told us to go to last week, but they refused us and sent us to another lab they told us to go to. Our second visit to the Rheum was this morning when we got a call that our our appointment was caneled. They said the doctor could not diagnose me with only one lab work done. We had to go to another lab today and they took 13 vials of blood. I my see the doctor in a week from now. My new Gastro doctor has done a barium xray Saturday that took four hours. Tomorrow I have another xray and then as soon as I can come off the oxycodone (spelling) I have an 18 hour Xray. I am on all new meds now. They doubled the dose of everything. I have to be on steriods for a full month. I am starving all the time. I hate it!! They are working hard to put all the pieces back together again. They are saying that I don't have MCTD. I have Mixed Connective Vasular Disease. That one is not pretty!! The sad thing is I can't share all my new dianoses with our children (Adults) because they ae sick of hearing Mom is sick so they are no longer calling or texting. I did get a hateful email that I can't talk about because it just hurts so bad. I didn't ask for this body! This is what God gave me. I have never been so hated before in my whole life! I didn't do anything wrong! I'm going to go rest now. I'm making progress health wise but loosing my family on the way. I'll pray to God about this. Love you guys! How are you all doing? I miss you!
Replies
I wish I could send your children this quote: "Don't judge my path if you have not walked my journey." You are right, you didn't do anything wrong! I went through a similar thing and now going through a bad divorce. You are fortunate to have your husband's support. Be strong!
I hate you had the same situation! I will pray for you> I hate the divorce! Can I help? Prayers to you, I love you. Hugs and kisses. Gail