Nursing home meeting
Well, today I had to have a meeting at the nursing home regarding my mother's release from it. She wants to come home, I want her to be able to come home (sort of), but they do not think that she has progressed enough to come home without 24 hours supervision.
They keep saying she needs 24 hour supervision - and I keep picturing a ball and chain around my ankle. I also picture my mother lying face down on the floor with me not able to get her up.
I don't know the reality of how well she could manage here - but I do have a pretty good idea of how I will manage with her needing constant supervision. I would totally suck at it - it would drive me mad. I already have a "trapped" feeling, because I am staying here, but more than that, I have a child who requires constant effort. She has a therapist, needs a psychiatrist, dentist, vision doctor (whatever you call that), and I've already contracted a GP. I have "you will not believe what your daughter did" meetings at the school and sometimes have to drop everything and go up there.
In Maine, it took at least 1/2 hour to get to her school - here it takes less than 10 minutes. But still, a special needs child requires quite a bit of extra effort.
So when they say that I cannot leave her alone, I cannot guarantee that she'll have 24/7 coverage without hiring people and scheduling carefully - and some of this that I have to deal with cannot be scheduled.
One of the options they suggested is staying where she is, in the nursing home, and applying for Medicaid when she is properly paid down, another was hiring people to come to the house all day every day (which is more than she can afford), and the third is Adult day care - where she would be able to come home for the evenings.
I am quite certain that I can manage to schedule everything for during the day, and she would at least be able to come home while being cared for the rest of the time.
They are arranging for a social worker to help me out with the processes in order to get me settled on something so that we can help her do the best thing for her.
Good luck to us.
They keep saying she needs 24 hour supervision - and I keep picturing a ball and chain around my ankle. I also picture my mother lying face down on the floor with me not able to get her up.
I don't know the reality of how well she could manage here - but I do have a pretty good idea of how I will manage with her needing constant supervision. I would totally suck at it - it would drive me mad. I already have a "trapped" feeling, because I am staying here, but more than that, I have a child who requires constant effort. She has a therapist, needs a psychiatrist, dentist, vision doctor (whatever you call that), and I've already contracted a GP. I have "you will not believe what your daughter did" meetings at the school and sometimes have to drop everything and go up there.
In Maine, it took at least 1/2 hour to get to her school - here it takes less than 10 minutes. But still, a special needs child requires quite a bit of extra effort.
So when they say that I cannot leave her alone, I cannot guarantee that she'll have 24/7 coverage without hiring people and scheduling carefully - and some of this that I have to deal with cannot be scheduled.
One of the options they suggested is staying where she is, in the nursing home, and applying for Medicaid when she is properly paid down, another was hiring people to come to the house all day every day (which is more than she can afford), and the third is Adult day care - where she would be able to come home for the evenings.
I am quite certain that I can manage to schedule everything for during the day, and she would at least be able to come home while being cared for the rest of the time.
They are arranging for a social worker to help me out with the processes in order to get me settled on something so that we can help her do the best thing for her.
Good luck to us.
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