Not happy
Hi everyone,
I have been on cortisone for 5 days from my local Dr as having more of a flare up & struggling. Could barely walk & talking was difficult as well as weakness in left side etc.
I phoned the neurologist rooms on Tuesday & spoke to ms nurse who said stay on them to total of 7-10 days then decrease. They really only started to help on day 6 which too long. Up till then I had fallen over numerous times, walked into walls, bashed the walker into corner (not getting doorways right), changing subject of conversation part way through & others not having a clue what I am on about. Have also had speech problems, spasms, burning feet, zapping all over, the whole gamut of symptoms & fatigue has been my worst enemy. I am still making myself go to work the 3 days as it gets me to of the house & doing something (as well as the $$ which are needed). Friday night was a friends 60th bd (well its not till June 2 but we got together last night to make it easy. There are 6 ladies that get together once a month. The lady who’s BD it is invited us all over for dinner (night meal) & she put on a huge spread. We had Lemon sorbet to start, then roast chicken & roast beef, peas, carrots, cauliflower, pumpkin & lots of other vegetables. There was heaps of food. The piece de resistance was the sweets. There was a fresh strawberry with ice cream & chocolate topping & a filo pastry done in the shape of a flower with petals & apple & rhubarb inside it. There was one of each for all of us & it was lovely. After dinner went & sat in lunge room & chatted. My problems started after I left, my friend has 2 cats & 3 dogs & although they were all outside obviously hair was inside. I have been there before & sat in lounge & been ok (always take medications before I go there) but this time I really reacted last night. Absolutely every joint hurt with burning pains, spasms of arms & legs, back pain, hip pain, stomach pain, hands went into claw & a massive migraine as well. I took so many pain killers including a morphine one, waiting 2 hours between each different one & none worked. I was freezing cold & shivering & turned the electric blanket on low but hubby said my body was very hot. I ended up putting on a long flannelette nightie to try to stay warm. I felt total crap Saturday, everything is still hurting & pain killers are only taking the edge of it. This is still being on 25mg cortisone so I am dreading getting off it. Not feeling happy at all today & glad its Saturday so I can rest.
Unfortunately today (Sunday) I still woke up very crappy this morning, worse if anything with right eye closed & left side dead/numb. I had breakfast & gradually improved as I woke up. Mind you I didn’t get up till midday so a long sleep in. Left arm & eye are much better but leg is still dragging. Thought I was going to have to go to hospital to start with but improving so wont have to do that which is good. I don’t ever want to get sick but the timing would suck big time if it happened now. As the day has gone on my eye is ok, left arm & hand has some use but leg is still dead & right foot is numb as wll as not working fully.Not happy,Sue
I have been on cortisone for 5 days from my local Dr as having more of a flare up & struggling. Could barely walk & talking was difficult as well as weakness in left side etc.
I phoned the neurologist rooms on Tuesday & spoke to ms nurse who said stay on them to total of 7-10 days then decrease. They really only started to help on day 6 which too long. Up till then I had fallen over numerous times, walked into walls, bashed the walker into corner (not getting doorways right), changing subject of conversation part way through & others not having a clue what I am on about. Have also had speech problems, spasms, burning feet, zapping all over, the whole gamut of symptoms & fatigue has been my worst enemy. I am still making myself go to work the 3 days as it gets me to of the house & doing something (as well as the $$ which are needed). Friday night was a friends 60th bd (well its not till June 2 but we got together last night to make it easy. There are 6 ladies that get together once a month. The lady who’s BD it is invited us all over for dinner (night meal) & she put on a huge spread. We had Lemon sorbet to start, then roast chicken & roast beef, peas, carrots, cauliflower, pumpkin & lots of other vegetables. There was heaps of food. The piece de resistance was the sweets. There was a fresh strawberry with ice cream & chocolate topping & a filo pastry done in the shape of a flower with petals & apple & rhubarb inside it. There was one of each for all of us & it was lovely. After dinner went & sat in lunge room & chatted. My problems started after I left, my friend has 2 cats & 3 dogs & although they were all outside obviously hair was inside. I have been there before & sat in lounge & been ok (always take medications before I go there) but this time I really reacted last night. Absolutely every joint hurt with burning pains, spasms of arms & legs, back pain, hip pain, stomach pain, hands went into claw & a massive migraine as well. I took so many pain killers including a morphine one, waiting 2 hours between each different one & none worked. I was freezing cold & shivering & turned the electric blanket on low but hubby said my body was very hot. I ended up putting on a long flannelette nightie to try to stay warm. I felt total crap Saturday, everything is still hurting & pain killers are only taking the edge of it. This is still being on 25mg cortisone so I am dreading getting off it. Not feeling happy at all today & glad its Saturday so I can rest.
Unfortunately today (Sunday) I still woke up very crappy this morning, worse if anything with right eye closed & left side dead/numb. I had breakfast & gradually improved as I woke up. Mind you I didn’t get up till midday so a long sleep in. Left arm & eye are much better but leg is still dragging. Thought I was going to have to go to hospital to start with but improving so wont have to do that which is good. I don’t ever want to get sick but the timing would suck big time if it happened now. As the day has gone on my eye is ok, left arm & hand has some use but leg is still dead & right foot is numb as wll as not working fully.Not happy,Sue
Replies
Sue, it\'s awhile since you wrote this so I hope your condition has improved.
wish we good be healthy again hon xxx