New to Support Group

The middle of 9/2015 I developed a rash on my face and chest. @ this point I had minimal upper arm weakness. My primary medical doctor prescribed me some topical ointments, he thought maybe I had Rosacea and not sure what was up with the chest rash.  9/30/2015 my rashes came back "flaming" and my weakness was really bad, I could not hardly go, my husband was having to brush my hair.  Also, I developed new rashes to my right lower abdomen and left upper thigh.  @ this point he did some lab work and placed me on Doxycycline for the Rosacea. The first week of October the nurse called me back and stated they were referring me to a Neurologist and the referral team would be calling me back with an appointment, @ this point all she told me was my CPK was elevated.  The referral team called me back and said I had an appointment sometime in November.  I was basically freaking out because I was just getting worse and I was not sure what to do!  I called my doctor's office and got a copy of my labs and see that my CPK was greater than 1000 and my Aldose was elevated.  I am a RN, so I knew this was alarming.  So I called around and attempted to get an earlier appointment to make a long story a little shorter on 10/8/2015, thankfully the neurologist looked @ my lab work and asked me to come in that day!  He believed due to my symptoms I had some type of myositis but not sure what type and did not want to start treatment until he was certain.  10/12/2015 I had a muscle biopsy-this did not show inflammation, which was very weird, so he did not start treatment.  My symptoms just progressively got worse and my liver functions were elevated. I got to were I could not drive, my husband and 3 boys were having to help with everything! My neurologist then referred my to a dermatologist the first week of November and he completed a punch skin biopsy it was positive for the Dermatomyositis.  @ this point both neuro and dermatologist were now ok with placing me on treatment.  So I have been on Prednisone 40mg daily and Plaqnenil 200mg bid.  I have been out of work since 11/5/2015.  I am now seeing a Rheumatologist, they all want me to start on Methotrexate so I can be weaned of the Prednisone, but my GI MD will not clear me for that until he rules out my liver.  My liver studies are still high and something showed up on my CT, so tomorrow I have MRI of my abdomen.  As of Tuesday my CPK lever is finally normal and the only things I still need help with is brushing my hair and putting jackets on, huge improvement!  So now I just struggle with when and will I be able to go back to work.  I really need to finanacially but I am not sure if I can:-(  I will start some physical therapy this week, so maybe after this I will know more.