New pill
So far what is left of my pancreas after the Whipple's surgery is not working. I am unable to digest food without the help of my viokase. My pancreas is still really sick from my disease. I am going to start taking a new trial drug to see if it will help with the inflamation and suppress the Autoimmune attack. So far the Prednisone is helping but it is not recomended i take it for the rest of my life and deffinately not a 40 mg a day. Hopefully the new pill works for me. Possible side affect is the supression of bone marrow production and in rare cases it has been known to trigger leukemia. But the long term benifits are looking good. Studies show this drug to work in most cases for people in my situation. Lets hope this works. I really want a Chili dog. :)
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Sorry to hear you still need the meds to digest food. They have increased my dosage and it seems to be helping me a bit but it would be nice to not need pills to eat right!!
Hello all. Its been awhile since i wrote i know. I started work again and life is hectic. Any hoo... Recovery is still going good. I am 4 month out from my surgery and finally my digestive system seems to be getting back on track. I am about 60 % through recovery. I still have alot of aches internally which i am told is normal and my pancreas still does not want to work. Last test showed no function yet. Seems i am now a case study here at Beth Isreal in boston in Harvard. They are trying a experimental drug on me to see if it works. I\'m a little worried cuase it will lower my immune system and decrease production of bone marrow. It also has a slight risk of causing some cancers and lukemia. Since my condition is so serious they figure the beniffits at this point out weigh the dangers. Sooo, i have to go get blood work every teo weeks now and se the surgeon and the specialist regularly and check in with my primary care every week. I feel like a cancer survivor. My mom had to go through this with her cancer. Still i am alive. Today it rained rally heavy. While everyone else ran for cover i stood out side and raised my face to the rain and really enjoyed it all. I guess you look at things differently when you get a second chance on life. well 8 months left for total recovery. Things aren\'t so bad i guess so i have high hopes. I have the best of the best in thier fields treating me so if anything elase at least i\'m in the best hands i can get. Hope everyone else is doing well and hanging tough. Talk to everyone soon. Take care.