Neurologist Visit
I saw my neurologist today. The MRI did confirm that I have enlarged ventricles in my brain and the nuclear cisternogram confirmed slow CSF absroption. My symptoms are balance issues and erratic arm movement. She is a little puzzled by my symptoms which are atypical for Normal Pressure Hydrocephalus so she is referring me to the Center for Advanced Medicine. She asked me if I knew where it was. I told her that I do know the location...boy do I know the location. My pulmonologist sent me to the leading asthma specialist there, my ENT doc sent me there to a speech therapist for my videostroboscopy, and now I get to go there again. I should ask for my own parking space. I always knew that I was unique...I just didn't think that it would be in the way I react to medical conditions. I don't particularly like it when I confuse my doctors. I have sort of adjusted to the symptoms actually. I just have to be very careful. But I guess some doctors haven't met me yet. So I'll get to meet a new group. However it won't be anytime soon. Supposedly it will take 6 months to get an appointment. That's all right by me. I'm in no hurry. So there you have it, I'm feeling OK but like the doc I'm a little confused. Be well,Tom
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I just got a call from the neurologist\'s office. I have to go get another MRI since it has been 6 months since my last. Where does the time go? I think I\'m the only one who has to replace his insurance card due to wear. (Just kidding...sort of).
Oh well, medicine is my life.
Tom
Oh Tom! I know JUST how you feel...or I think I do. MRIs are not fun but not horrible either. It sounds like the pressure from the cerebral spinal fluid is causing your imbalance. This is fixable, no? Has anyone suggested dystonia? Hoping the smarty pants doctors are able to figure it out. I know what you mean about your insurance card. I believe when my HMO gets wind that I\'m leaving CA they will be jumping up and down because they paid much for my care. Onward to more average patients for them. Meanwhile, Chicago HMO has yet to figure me out. Boy will they be surprised when I get there!