My story with Endo

This is my first time ever joining a support group. This diagnosis has been so stressful for myself and my husband. I was officially diagnosed one month ago, however I have been dealing with the effects for years.

Unbeknownst to me before, all of my ailments have something in common related to Endo, and have started to make sense as I have started researching the subject. 

The symptom that urged me to see my obgyn was the extreme amount of pain that sex with my husband caused. When he is inside of me it feels as though his parts are a hammer that is crushing every part that it touches.

It has taken a toll on our relationship. I have become more stand offish to his shows of affection. I no longer enjoy any sexual contact, as a matter of fact I dread the thought of sex. I have sex related anxiety now, I dont show my husband my love for him. He tells me that he feels that I am no longer attracted to him. Sometimes he believes that I am just an attention seeker and not really in pain, or that I dont want the pain to end and I never see the light at the end of the tunnel. He says I am a hypochondriac... That's what this disease has done to US.

Using the bathroom is painful and I no longer strain, I just let my body do its thing. There is a constant pressure/pulling down sensation in my pelvis as well as the feeling of sciatica when the inflammation presses on my nerves. (If you have had children it feels like the baby's head on your nerves in the 3rd trimester.)My left ovary is always swollen and seems as though it will burst at any time.

I sometimes think that I have "pulled my back out" by lifting something or twisting the wrong way, however, come to find out it is the endometriosis that is wreaking havoc on my insides. I do have a separate spinal problem: my cervical spine from C3 to T1 is flattening my spinal cord, so the daily back/neck pain is not new to me.

A few years ago I went to an immunologist in relation to the chronic pain ive had in my wrist. I had a ganglion cyst removed in the past but the MRI wasnt showing any new growths... I dont have carpel tunnel, I dont have rheumatoid arthritis, I dont have this or that, yet Dr said I DO have an autoimmune disease, he just can't pinpoint exactly which one... (Great, so I'm sick but nobody knows why or how.) And here we are, IT ALL MAKES SENSE NOW!!! Ive had endometriosis this WHOLE TIME!