MY MODUS VIVENDI
HOW I CHOOSE TO LIVE.
THE MAN IN ME, THE MAN I AM. Modus Vivendi. Parkinson's disease: Parkinson's condition(pc). I don't like the term disease, it does not sit right with me.End of dose failure: End of dose rest(EODR). Recharge, recovery, recreate and refresh.Off time: Enforced time out. Go to hell and regroup. Resilience, bounce back, get on with life, with living.On time: Windows of benefit/opportunities(WOBOS). I make full use of these beautiful precious periods, I squeeze every minute out of them.Motivation: Put myself in the mood.Formula: motivation-mood-mode-momentum, in that order. motivation + mood = mode motivation + mood + mode = momentum.My formula for getting things done. Imagine, visualise, goal setting, planning, pro-action and action.Monitor, adjust, upgrade accordinglyand still take time out to smell the roses. I acknowledge and I am aware that,I can not feel good all day every day.I didn't even when I was in my prime. No one scores ten out of ten 100% of the time.Only the mediocre are ever at their best.Self pity: Been there done that, it doesn't work.I've complained, moaned and lamented too.The worst that can happen to me has already happened.I'm freed up, released, I'm free. I'm a free thicker.I make no apologies for that.I can put up and shut up, I endure according to temperament.Vocabulary and diction: I have a strong North of England,English accent and I speak in the vernacular. I make no apologies for that either.Dreams: I have experienced hallucinations only occassionly I have vivid crazy dreams, they are only in my head.Gone the next day, forgotten. Pride: I can have my pride, and swallow it too, it's not poison.Place of abode: Australia, I love this country.Education: School of hard knocks, I majored. I learn something new everyday.Motivation: I'm self motivated, I pass it on to others, it's free.Assertiveness: I'm assertive,I can say no and not feel guilty.I feel no need to justify myself, unless I choose, notwithstanding, in any given situation, one must act accordingly and do what is necessary.Commitment:I think, feel and believe that with whatever skills,knowledge and knowhow I possess, couple this with 100% + effort,I will be twice the man I am.I have an "I can do" attitude and an optimistic outlook. Serves no purpose to be otherwise.I know why a beggar won't thank you, and why an unemployed man has no energy.Back up: No one does it on there own.I have total trust and confidence in my neurologist,I think he's the best.I feel the same about my Parkinson's Nurse Specialist, she is special.This is a formidable team and I'm part of it,I owe it to them and myself to play my part.I participate fully in my local Young Onset Support Group, we draw strength from each other.Parkinson's Western Australia Inc,they are there for me and me for them.I travel with the erratic nature of pc,I live with the uncertainty, as with life in general.I fight and deal with it by managing it better,maintaining a winning position. I'm becoming more informed,I take onboard what my clinicians tell me.Control:I am well informed of the symptoms and nature of pc. I'm in control, self control, empowered, supreme self control, self possession, legendary self possession. Fatigue:I can feel tired and drive myself, or stop to rest.Some days I feel good, others I feel better.Respect:I do not give pc too much respect. Indeed I give it no respect at all, does not deserve any.One has to earn it to deserve it and pc has fallen well short.I don't even give it capital letters, imposter that it is.Give in to pc - not yet, no white flag.I'm well aware of the progressive nature of pc.I am flexible, I can adapt.There's plenty of me left, and plenty left in me.Love: It's mine to give. I give it to whomever I choose. It's free too.Self love: I like myself, I like being me.I do not feel that is being selfish or self centred.Indeed no, I cannot love anyone unless I love myself.Responsibility: Self responsibility. I am responsible for how I feel.This is governed by my thoughts,what and how I think, my thinking.Therefore I make sure they are positive and rational. I jettison all negative thought and thinking and switch off,my negative chatter box, it serves no good purpose. Self doubts: I take no cognisance of my self doubts and fears,sometimes I kid myself. They are not real, and sometimes, I wonder.I feel the fear and do it anyway, and the fear dissipates.Just do it and do it now.I live in the moment, in the now.The only time there is. The only time I have.We're all equal in this respect.The time is now, and now is the time.There are sixty minutes in my hour, same as in everyone's.The present is that moment of time, it takes the future,to slip into the past, and there is no guarantee of tomorrow.Today is the tomorrow I worried about yesterday, I'm still here, and I'm OK, even better.I'm managing well, there are areas where I'm excelling.I've no time to lose, only time to win.Self expectancy: I expect nothing from anyone, and much from myself.Talk the talk and walk the walk, I talk my self talk and walk my self walk,sometimes I shuffle.There is no virtue in timidity.Risks: Risk taking.Taking risks is less risky than not taking risks. I want, I do, I dare, I risk, I am.No one can doubt my courage, only me.Giving: I endeavour to give people a hand up, rather than a hand out.The most valuable gift I can give anyone is my time,a listening ear and all that goes with it, and a kick up the backside when warranted, myself too.Forgiving: Sometimes I get it all wrong and mess up. I forgive others, I can forgive myself.I like people, a people person, I can be alone and not feel lonely.Thoughts and feelings: I'm responsible for my own.As thoughts precede and create feelings,I do not feel responsible for other people's thoughts and thinking, that is their stuff. I'm certainly not responsible for their feelings.I respect and can understand their feelings,be a good listener and hear what is not being said.I can empathise and sympathise.I'm human, with flaws and shortcomings, like the rest of humanity.I'm not perfect. I cannot please everyone, least I end up pleasing no one.I read somewhere to believe in God, your family and yourself, in that order.The first two do not apply.I think, feel and believe my first duty is to myself, I cannot help others if not myself.Self esteem - mine's high and healthy, I work on it, ongoing.Self respect - I have tremendous self respect, I take good care of myself, I do not allow necessities to become luxuries.Self image - Good positive self image, good sense of self. Clean cut, well presented.I can reach for the sky and I might just touch the stars.Sometimes good things can happen and they do.What goes around comes around, good and bad, it is a lore of life.Who knows what the future holds, I cannot tell, and thank goodness for that.I would not have wanted to know my future a few year ago.Dependency: Disability Support Pension.It does not sit well with me, alas. I am fortunate I live in a country that can do this.I do not feel the world owes me living. Sympathy: I do not feel sorry for myself, I do not want anyone to feel sorry for me, I do not wrap myself up in cotton wool.Product: I am a product of my life and times,situations, issues and circumstances, I do not feel I am a victim.I am self reliant. I can accept help, I can ask for help.I have interests, hobbies and pursuits.I do what I do because I want to, for an audience of one.I'm quite willing to share, I ask for no applause. Self praise, I can pat myself on the back, every good boy deserves favour.I wear my heart on my sleeve, I can keep my own council.Humour: I do not take myself so serious,I can take a joke.I have a ready smile. I can laugh easily and sponteaneously.I like social banter, I love a good belly laugh.Humour, it can break the ice, bring people together and heal the body and soul.I can laugh at myself, often do.Give in to pc - repeat, not yet.A man is only beaten when he walks out of the arena.There is no white flag in my armoury.I let put downs and negativity just bounce off me,having no affect at all. Negativity will not pull me through, it is a drain on my energy. I've no time for negative and defeatist talk. I rarely watch the TV,I can keep up with current affairs without TV.I am a wholly total positive person in attitude thoughts and deed. I can get a positive out of most things.I have let go of what I had become. I have moved on.I'm growing, glowing, showing, shining and excelling.I leave perfection to others.I'll settle for being good to excellent any time.Working class hero - if you want to be a hero don't follow me.Too much, too many,I've had many dark nights of the soul.I have gone down deep within myself,explored the frontiers of my mind, my soul, resurfaced and found myself secure.I am unique, I'm not part of a critical mass.I'm the best at being me. I like being me.I am Stewart - ALIVE - O, ALIVE - ALIVE - ALIVE - O, Happy to be, and happy to be me. My spirit still sings.These are the terms I choose to live my life. I am, Stewart B West. Circa 2007. This is my battle cry, my war cry against Parkinson's Condition. This is no dress rehersal, this is the real thing. This is where I play my hand, this, is where make my stand. Forward, ahead. Without Marx or Jesus. This is a brand new day, I will rejoice and excel in it. I will not be found wanting, I will not die wondering, I have not given in. Parkinson's got me? No, I've got it, I'm in control. Parkinson's Condition, impostor, I spit in the face. Don't cry for me Argentina. I've crossed the Rubicon, I'm not backing out, I accept the challenge. THE MAN I AM, THE MAN IN ME.No apologies, I am, Stewart B West.
MORE THAN MERE REFLECTIONS OF POSITIVITY, THIS IS HOW I POSITIVELY CHOOSE TO LIVE MY LIFE.
THE MAN IN ME, THE MAN I AM. Modus Vivendi. Parkinson's disease: Parkinson's condition(pc). I don't like the term disease, it does not sit right with me.End of dose failure: End of dose rest(EODR). Recharge, recovery, recreate and refresh.Off time: Enforced time out. Go to hell and regroup. Resilience, bounce back, get on with life, with living.On time: Windows of benefit/opportunities(WOBOS). I make full use of these beautiful precious periods, I squeeze every minute out of them.Motivation: Put myself in the mood.Formula: motivation-mood-mode-momentum, in that order. motivation + mood = mode motivation + mood + mode = momentum.My formula for getting things done. Imagine, visualise, goal setting, planning, pro-action and action.Monitor, adjust, upgrade accordinglyand still take time out to smell the roses. I acknowledge and I am aware that,I can not feel good all day every day.I didn't even when I was in my prime. No one scores ten out of ten 100% of the time.Only the mediocre are ever at their best.Self pity: Been there done that, it doesn't work.I've complained, moaned and lamented too.The worst that can happen to me has already happened.I'm freed up, released, I'm free. I'm a free thicker.I make no apologies for that.I can put up and shut up, I endure according to temperament.Vocabulary and diction: I have a strong North of England,English accent and I speak in the vernacular. I make no apologies for that either.Dreams: I have experienced hallucinations only occassionly I have vivid crazy dreams, they are only in my head.Gone the next day, forgotten. Pride: I can have my pride, and swallow it too, it's not poison.Place of abode: Australia, I love this country.Education: School of hard knocks, I majored. I learn something new everyday.Motivation: I'm self motivated, I pass it on to others, it's free.Assertiveness: I'm assertive,I can say no and not feel guilty.I feel no need to justify myself, unless I choose, notwithstanding, in any given situation, one must act accordingly and do what is necessary.Commitment:I think, feel and believe that with whatever skills,knowledge and knowhow I possess, couple this with 100% + effort,I will be twice the man I am.I have an "I can do" attitude and an optimistic outlook. Serves no purpose to be otherwise.I know why a beggar won't thank you, and why an unemployed man has no energy.Back up: No one does it on there own.I have total trust and confidence in my neurologist,I think he's the best.I feel the same about my Parkinson's Nurse Specialist, she is special.This is a formidable team and I'm part of it,I owe it to them and myself to play my part.I participate fully in my local Young Onset Support Group, we draw strength from each other.Parkinson's Western Australia Inc,they are there for me and me for them.I travel with the erratic nature of pc,I live with the uncertainty, as with life in general.I fight and deal with it by managing it better,maintaining a winning position. I'm becoming more informed,I take onboard what my clinicians tell me.Control:I am well informed of the symptoms and nature of pc. I'm in control, self control, empowered, supreme self control, self possession, legendary self possession. Fatigue:I can feel tired and drive myself, or stop to rest.Some days I feel good, others I feel better.Respect:I do not give pc too much respect. Indeed I give it no respect at all, does not deserve any.One has to earn it to deserve it and pc has fallen well short.I don't even give it capital letters, imposter that it is.Give in to pc - not yet, no white flag.I'm well aware of the progressive nature of pc.I am flexible, I can adapt.There's plenty of me left, and plenty left in me.Love: It's mine to give. I give it to whomever I choose. It's free too.Self love: I like myself, I like being me.I do not feel that is being selfish or self centred.Indeed no, I cannot love anyone unless I love myself.Responsibility: Self responsibility. I am responsible for how I feel.This is governed by my thoughts,what and how I think, my thinking.Therefore I make sure they are positive and rational. I jettison all negative thought and thinking and switch off,my negative chatter box, it serves no good purpose. Self doubts: I take no cognisance of my self doubts and fears,sometimes I kid myself. They are not real, and sometimes, I wonder.I feel the fear and do it anyway, and the fear dissipates.Just do it and do it now.I live in the moment, in the now.The only time there is. The only time I have.We're all equal in this respect.The time is now, and now is the time.There are sixty minutes in my hour, same as in everyone's.The present is that moment of time, it takes the future,to slip into the past, and there is no guarantee of tomorrow.Today is the tomorrow I worried about yesterday, I'm still here, and I'm OK, even better.I'm managing well, there are areas where I'm excelling.I've no time to lose, only time to win.Self expectancy: I expect nothing from anyone, and much from myself.Talk the talk and walk the walk, I talk my self talk and walk my self walk,sometimes I shuffle.There is no virtue in timidity.Risks: Risk taking.Taking risks is less risky than not taking risks. I want, I do, I dare, I risk, I am.No one can doubt my courage, only me.Giving: I endeavour to give people a hand up, rather than a hand out.The most valuable gift I can give anyone is my time,a listening ear and all that goes with it, and a kick up the backside when warranted, myself too.Forgiving: Sometimes I get it all wrong and mess up. I forgive others, I can forgive myself.I like people, a people person, I can be alone and not feel lonely.Thoughts and feelings: I'm responsible for my own.As thoughts precede and create feelings,I do not feel responsible for other people's thoughts and thinking, that is their stuff. I'm certainly not responsible for their feelings.I respect and can understand their feelings,be a good listener and hear what is not being said.I can empathise and sympathise.I'm human, with flaws and shortcomings, like the rest of humanity.I'm not perfect. I cannot please everyone, least I end up pleasing no one.I read somewhere to believe in God, your family and yourself, in that order.The first two do not apply.I think, feel and believe my first duty is to myself, I cannot help others if not myself.Self esteem - mine's high and healthy, I work on it, ongoing.Self respect - I have tremendous self respect, I take good care of myself, I do not allow necessities to become luxuries.Self image - Good positive self image, good sense of self. Clean cut, well presented.I can reach for the sky and I might just touch the stars.Sometimes good things can happen and they do.What goes around comes around, good and bad, it is a lore of life.Who knows what the future holds, I cannot tell, and thank goodness for that.I would not have wanted to know my future a few year ago.Dependency: Disability Support Pension.It does not sit well with me, alas. I am fortunate I live in a country that can do this.I do not feel the world owes me living. Sympathy: I do not feel sorry for myself, I do not want anyone to feel sorry for me, I do not wrap myself up in cotton wool.Product: I am a product of my life and times,situations, issues and circumstances, I do not feel I am a victim.I am self reliant. I can accept help, I can ask for help.I have interests, hobbies and pursuits.I do what I do because I want to, for an audience of one.I'm quite willing to share, I ask for no applause. Self praise, I can pat myself on the back, every good boy deserves favour.I wear my heart on my sleeve, I can keep my own council.Humour: I do not take myself so serious,I can take a joke.I have a ready smile. I can laugh easily and sponteaneously.I like social banter, I love a good belly laugh.Humour, it can break the ice, bring people together and heal the body and soul.I can laugh at myself, often do.Give in to pc - repeat, not yet.A man is only beaten when he walks out of the arena.There is no white flag in my armoury.I let put downs and negativity just bounce off me,having no affect at all. Negativity will not pull me through, it is a drain on my energy. I've no time for negative and defeatist talk. I rarely watch the TV,I can keep up with current affairs without TV.I am a wholly total positive person in attitude thoughts and deed. I can get a positive out of most things.I have let go of what I had become. I have moved on.I'm growing, glowing, showing, shining and excelling.I leave perfection to others.I'll settle for being good to excellent any time.Working class hero - if you want to be a hero don't follow me.Too much, too many,I've had many dark nights of the soul.I have gone down deep within myself,explored the frontiers of my mind, my soul, resurfaced and found myself secure.I am unique, I'm not part of a critical mass.I'm the best at being me. I like being me.I am Stewart - ALIVE - O, ALIVE - ALIVE - ALIVE - O, Happy to be, and happy to be me. My spirit still sings.These are the terms I choose to live my life. I am, Stewart B West. Circa 2007. This is my battle cry, my war cry against Parkinson's Condition. This is no dress rehersal, this is the real thing. This is where I play my hand, this, is where make my stand. Forward, ahead. Without Marx or Jesus. This is a brand new day, I will rejoice and excel in it. I will not be found wanting, I will not die wondering, I have not given in. Parkinson's got me? No, I've got it, I'm in control. Parkinson's Condition, impostor, I spit in the face. Don't cry for me Argentina. I've crossed the Rubicon, I'm not backing out, I accept the challenge. THE MAN I AM, THE MAN IN ME.No apologies, I am, Stewart B West.
MORE THAN MERE REFLECTIONS OF POSITIVITY, THIS IS HOW I POSITIVELY CHOOSE TO LIVE MY LIFE.
Replies
You\'ve crossed the Rubicon, Stewart... but definitely not the Styx. Keep paddling!
Stewart, i can;t believe I have never read thru your MOTIS VIVENDI. Truly inspiring. I would like to share this with my support group Young onset of Westchester and the Bronx. The group has really grown some legs with 3 new attendees at our last monthly meeting. Now 25plus people and supporters. sharing and caring and providing information on how to live and thrive with PD. When I was new to this site you were inspiration. Now I want to pass it foreward for all who need to get uplifted. Thank you in advance. Your friend Alex