MY Journey
In Dec 2009, after a routine blood test for a normal physical my Dr called and said that my white blood cells lymphocytes were slightly elevated but not to worry it is probably only a infection somewhere in my system and that my body is trying to fight it. He suggested that we do another blood test in Feb.
In Feb the count had risen again and he called and we discussed it. I started researching on- line and came up with CLL.
He did not agree or disagress but said we would W&W. In March I went to see him again and again I was very slightly elevated. After discussing with him for a long time he suggested that I see a specialist. Which I did. My counts were still under 5000 at that time. The specialist did more blood work and said that at that time I did not have CLL but something call MBL type CLL.
In June I hit a count of 5900. Still not diagnosed as CLL but with MBL.
My internist who is a real gem, called to see how I was feeling and I told him that my count was up and I was feeling real down. I asked me to come in and see him ( after a half hour on the phone). I did- he sort of snickered about the MBL- (which is what he had said the specialist would say). I thinks it is all semantics.
In Aug I had another blood test for my internist and the count has risen to 7000.
Still considered low but rising.
I have an appointment with the specialist in Sept.
Although I feel great physically I am suffering emotionally, crying fits that just seem to come on and I feel like I have lost my smile.
I haven't told anyone about this disease except my husband. Why worry my family when there is nothing that they can do to help.
It has been a hard 10 months of worry and concern and it is taking a toll on both myself and my husband.
I have been reading the journals on this site and believe it or not knowing that others feel the same as I do is comforting. At least I know that I am somewhat normal in my feelings.
As the days progress I hope to find my smile again and continue with a long and productive life.
Thanks for letting me get this off my chest.
In Feb the count had risen again and he called and we discussed it. I started researching on- line and came up with CLL.
He did not agree or disagress but said we would W&W. In March I went to see him again and again I was very slightly elevated. After discussing with him for a long time he suggested that I see a specialist. Which I did. My counts were still under 5000 at that time. The specialist did more blood work and said that at that time I did not have CLL but something call MBL type CLL.
In June I hit a count of 5900. Still not diagnosed as CLL but with MBL.
My internist who is a real gem, called to see how I was feeling and I told him that my count was up and I was feeling real down. I asked me to come in and see him ( after a half hour on the phone). I did- he sort of snickered about the MBL- (which is what he had said the specialist would say). I thinks it is all semantics.
In Aug I had another blood test for my internist and the count has risen to 7000.
Still considered low but rising.
I have an appointment with the specialist in Sept.
Although I feel great physically I am suffering emotionally, crying fits that just seem to come on and I feel like I have lost my smile.
I haven't told anyone about this disease except my husband. Why worry my family when there is nothing that they can do to help.
It has been a hard 10 months of worry and concern and it is taking a toll on both myself and my husband.
I have been reading the journals on this site and believe it or not knowing that others feel the same as I do is comforting. At least I know that I am somewhat normal in my feelings.
As the days progress I hope to find my smile again and continue with a long and productive life.
Thanks for letting me get this off my chest.
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