My HH Journey

I was diagnosed with Hereditary Hemochromatosis in December 2009.  I had never heard of HH.  Shocked is not the word.  I felt like a rug had been pulled out from under me.  I have the most horriable veins ever they are small and roll and blow.  If I had a regular blood draw it would take 3 - 4 sticks and then they usually had a hard time getting what they needed.  And thick.  So when I was told what the treatment was I was devistated.  At thatpoint my internist say I definately should get a port.  I get set up with a Hematologist and he left the practice so I had to changed over to another.  She had the head chemo nurse check my arms real good and she was in agreement that I needed a port, so I saw a surgeon and got scheduled for the surgery.  I had the port placed on 7/28/2010.  I have my first phleb on 8/12/2010.  I am having extreme anxiety and am totally stresses out.  My internist put me on Zanax Friday 8/6/10.