My first entry
Well, here is my first entry and I think it might help me to type things out, release feelings and fears and to hopefully get feedback from others. I have a million questions for someone to help answer on fibro and if any one would be willing to answer some, I would be so very grateful!! I am meeting on February 8th with my neuro to go over my diagnosis so I know I will get some answers then to my million questions, but I would like to ask them to someone who actually has the condition and can answer first hand ya know? I had heard the word fibromyalgia before but never really knew much about it, I am so happy now that it can actually explain all the weird symptoms I have been having for years. I always use to tell people it felt like my nerves were on the "outside" of my skin since things hurt me far worse than seemed normal. I can actually hurt from just rubbing soap on me while taking a shower. When I would tell people about this, they look at me like I was crazy. Sometimes I felt like I was! I mean I could step on the smallest thing on the ground and fall to the ground in pain and then have it hurt for the longest time afterwards! I would constantly tell my fiance not to play smack my tushie because it would feel like he slapped me as hard as he could. He never could understand it and neither could I, I just knew it hurt very badly. Like I said, the smallest bump would hurt so badly that I use to think it had something to do with my nerves. Doctors just ignored me when I mentioned how things hurt so badly, so I just excepted it as my life. It is so refreshing now to know why I always felt this way, cuz I have an actual condition that causes it!! The weak muscles, the never any energy, the headaches, the droopy eyes, problems swallowing, gastro issues, etc etc, It now all has an answer and it helps so much just knowing this! The pain increased so bad that I finally went to a different doctor in tears and said "I CAN'T TAKE IT ANYMORE something is wrong with me and no one does anything about it, please help me." And now begins my journey. I am very tired now so I must go to bed. I look forward to meeting others with fibro, sharing stories, helpful hints and support. Please drop a message, would love to hear from all of you
Replies
I find writing to be a really good release. Also, I have learned so much from reading the posts and replies here, plus posting some of my own questions. If you haven\'t visited The Fibro Puzzle group, yet, I would highly recommend it. Lots of us posted our own fibro story there, along with what we\'ve used to help. You can find this by clicking on Groups, across the top menu bar. Let me know if you have any problems finding it. I think you will find this helpful.
Best wishes :)
Just read your journal entry. The Fibro Puzzle group is a good start. Also, the main fibro group has lots of posts that give you ideas of natural things to try, or prescription drugs. Your condition sounds really sensitive. I\'ve never had the soap rubbing on my skin hurt, but I have had every muscle in my body, including armpits, feet, and hands, back and butt, all killing me at once, and exhaustion. (I tell hubby, the only thing that doesn\'t hurt is my stomach and my boobs)
I can tell you that soaking in hot water or in a hot shower helps the muscles be happier for awhile. Magnesium pills definitely help the muscles. When I skip mine, I hurt worse the next day. Many others online mention magnesium.
You will find so much help and support here.
If you are a Christian, I am in a wonderful group called \"Christians Fighting Fibro\". You can go to my profile page, I think, and look for my groups that I\'m in, and just click on it. Everyone there is so great, they\'ll pray for you and discuss the Bible, etc. I love it.
Time for bed, but just to let you know you\'ve got people on your side already.
Judy
Hi lilacs! That\'s my \'favorite\' flower. I think. I just love flowers!! Vome on think spring!
I read your first journal enry. I haven\'t been here long but I\'ve found so much help and info here. You just gotta keep looking around and keep your faith. And yes, it is good when we finally have an answer to why we feel so lousy. I\'ve had fibro awhile now and it sucks. By the way, I\'m in Sandwich. Lived in Ottawa for a short time, then Seneca after my divorce. Back with ex, and back in Sandwich. Feel free to message me anytime Cathy