More of the same...
No news on Sophia yet. She has been sedated several times over the last couple of weeks for test after test and NOTHING yet to explain her pain. One Dr. said we may just end up with a Fibromyalgia diagnosis, though they don't typically diagnose it this young. I would hate that diagnosis for her because I have friends who have that and basically it means "undiagnosed pain." People are so skeptical about accepting its validity and it just is not what I want to end up with. Argh. Anyone can see she is hurting and I want a DIAGNOSIS. I don't even care what it is anymore. I am starting to lose it....I don't have patience for all the suffering I watch with no answers...nothing to work with.
We spend most days at Children's Hospital. Jason still does not have a job...and for a change, he is actively trying to help us get pregnant...except that every single month..I kid you not...he gets Ovulation Plague. LOL It is what we call it now...must be his body's defense... He gets a horrible cold/flu thing every stinking month...when I ovulate. LOL But, THIS TIME, he still rose to the occasion (pun intended I guess...lol) and if I don't get a BFP, I think I will just die of a broken heart. I'm done. We have so much stinking stress in our lives that we need a little joy, you know?!?
God is so good to us...I'm sorry to whine. I'm just exhausted. Oh, speaking of my exhaustion, I have a funny story to illustrate how tired I am and how "medical" our lives are. (I also see 1 million specialists now as they try to figure out all my stuff). So, Sunday morning, my oldest DD and I left early for a full day of running around to end at church (and youth group for her) Sunday night. All day I kept noticing that my right leg seemed to have shrunk...my hip hurt, my back hurt and my right leg was suddenly about an inch shorter! I freaked out and kept wondering WHICH of my specialists I needed to tell about this...and how often they hear of someone waking up with a shorter leg?!? I pondered this all day...even during church as I bent my left leg to allow myself to stand straight...trying to help my back. So, at about 6:30, as they did the announcements of upcoming events, I happened to look down at my feet and saw what was causing my bizarre "symptom"...I was wearing TWO DIFFERENT SHOES....one heel of which was 1" higher than the other!!! LOL HOW TOTALLY EMBARRASSING!?!?!? I told my DD to add one more thing to her departure checklist when we leave the house...check my shoes! LOL WOW. AM I EVER TIRED!
Please pray that Sophia gets some rest...I feel like I could die of exhaustion...I really do. They need to help her.
We spend most days at Children's Hospital. Jason still does not have a job...and for a change, he is actively trying to help us get pregnant...except that every single month..I kid you not...he gets Ovulation Plague. LOL It is what we call it now...must be his body's defense... He gets a horrible cold/flu thing every stinking month...when I ovulate. LOL But, THIS TIME, he still rose to the occasion (pun intended I guess...lol) and if I don't get a BFP, I think I will just die of a broken heart. I'm done. We have so much stinking stress in our lives that we need a little joy, you know?!?
God is so good to us...I'm sorry to whine. I'm just exhausted. Oh, speaking of my exhaustion, I have a funny story to illustrate how tired I am and how "medical" our lives are. (I also see 1 million specialists now as they try to figure out all my stuff). So, Sunday morning, my oldest DD and I left early for a full day of running around to end at church (and youth group for her) Sunday night. All day I kept noticing that my right leg seemed to have shrunk...my hip hurt, my back hurt and my right leg was suddenly about an inch shorter! I freaked out and kept wondering WHICH of my specialists I needed to tell about this...and how often they hear of someone waking up with a shorter leg?!? I pondered this all day...even during church as I bent my left leg to allow myself to stand straight...trying to help my back. So, at about 6:30, as they did the announcements of upcoming events, I happened to look down at my feet and saw what was causing my bizarre "symptom"...I was wearing TWO DIFFERENT SHOES....one heel of which was 1" higher than the other!!! LOL HOW TOTALLY EMBARRASSING!?!?!? I told my DD to add one more thing to her departure checklist when we leave the house...check my shoes! LOL WOW. AM I EVER TIRED!
Please pray that Sophia gets some rest...I feel like I could die of exhaustion...I really do. They need to help her.
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