MG so Far

Well, this "adventure" started back in late August, 2011 when I woke up one morning and my right eye was drooping.  It got worse as the day progressed and continued to follow this patten.  I went to my family Dr. for it and he gave me eye drops thinking it was related to an infection.  After a week or so with the drops and no change, I went to see an Opthomologist.  His diagnoses was the same with the same treatment.  By this time I had started with the double vision and was referred to an Eye Surgeon.  He told me I had one of three possible problems( MG, stroke, or blood platelet that broke away and effected my ocular never).  He ordered a blood test for MG, which came back positive.  Now we had a diagnosis that made some sense but neither my wife or I had any idea what MG was.  We were referred to a Neurologist who started me on 60 mg of mestinon.  If a drug has side effects, I'll hit at least one if not more and this happened with mestinon.  I developed a reaction to a few of the side effects.   Since this wasn't working, I was put on a small dose of prednizone ( the dose size was limited because I am diabetic and take pills for high blood pressure).   The prednizone had no effect.I started with another Neuro this month so we'll see where this goes.  I had more blood tests and he wants me to get a Cat Scan of the brain.  He is waiting to see the results of these before proceeding.  His next plan of attack is Imuran.  I've been off work since late November.  I have weakness in my arms and legs and at times I have to think about breathing (sometimes it feels like a small elephant is sitting on my chest).  I haven't had and episodes issues with eating or swallowing, but I do have sensitivity to cold weather,  which isn't a great thing to have in Northeast Ohio this time of year.  The car ride to the hospital for the in early December for my CT scan was the first time I had the "cold effect".  My wife said it looked like I was having a seizure I was shaking so bad.  I've since had 2 other bouts of this.  It seems that I hit this at temps at or below 40 degrees.We started looking for warmer climates to improve my quality of life (I've only been out of the house since October for Dr appts and my wife has to take me due to the double vision and weakness).  We took a trip to Ocala, Fla at the end of January to look at and purchase a house.  While there I was able to participate in most of the trips to look at 5 houses and went out to dinner 4 out of 5 nights were were there.  I also was able to forgo the patch over my right eye for long periods of time.  I'd forgotten how good it feels to get out and go.That is it for now.  I try to keep a good attitude but it is hard.