Life In General
Well, hubby had his final test, the CT scan of the lower mid section of the body. If this, or pardon me, when it comes out clear, then we can almost put this whole issue behind us. Note I say almost because his last PSA was 14 which is actually the highest it's ever been.
If I understood the dr correctly it could mean he's experiencing a condition called PSA bounce which for a few yrs after treatment some men go thru a time where the PSA climbs up quite a bit then all of a sudden will go back down. It's possible then they might just regularily monitor him or the dr did say discussing further treatment options most likely some type of hormone therapy. It was funny cause the dr explained that he could experience some symptoms similar to a change of life type thing, eg., hot flashes. I stopped the dr & corrected him & explained that alot of us women don't refer to it as hot flashes anymore but we like to call them power surges. He got a good laugh out of that. It's funny, cause I don't really ever dwell on this whole issue. We live our lifes each & every day in the best we can, BUT, when I start bringing it to the forefront like here in a journal, then it really nags at me. I feel like this makes the whole picture difficult cause I can't live with my head in the sand, yet it's pointless to dwell on the what ifs & tomorrows that aren't even here.
I've so far had a really at times crazy busy November & for some of it I was not feeling at all on top of my game mentally or especially physically. I've started to rally the last week and a half which is good. You'd think after the number of yrs I've had lupus that I'd get used to these down periods but I still somehow find them at times hard to deal with & a pain in the you know where. But I do like to think of myself as a bit too stubborn to let it rule my life.
I started thinking the other day how kind of strange it will feel this yr to not do a special christmas card for Nancy(barlochan) and I know when I hang her ornaments on my little tree she sure will come to mind. But at least she's watching us from above.
Well I'll sign off for now, don't want to babble on too much. Hey, if anyone has some extra warm weather we could use a bit here LOL.
If I understood the dr correctly it could mean he's experiencing a condition called PSA bounce which for a few yrs after treatment some men go thru a time where the PSA climbs up quite a bit then all of a sudden will go back down. It's possible then they might just regularily monitor him or the dr did say discussing further treatment options most likely some type of hormone therapy. It was funny cause the dr explained that he could experience some symptoms similar to a change of life type thing, eg., hot flashes. I stopped the dr & corrected him & explained that alot of us women don't refer to it as hot flashes anymore but we like to call them power surges. He got a good laugh out of that. It's funny, cause I don't really ever dwell on this whole issue. We live our lifes each & every day in the best we can, BUT, when I start bringing it to the forefront like here in a journal, then it really nags at me. I feel like this makes the whole picture difficult cause I can't live with my head in the sand, yet it's pointless to dwell on the what ifs & tomorrows that aren't even here.
I've so far had a really at times crazy busy November & for some of it I was not feeling at all on top of my game mentally or especially physically. I've started to rally the last week and a half which is good. You'd think after the number of yrs I've had lupus that I'd get used to these down periods but I still somehow find them at times hard to deal with & a pain in the you know where. But I do like to think of myself as a bit too stubborn to let it rule my life.
I started thinking the other day how kind of strange it will feel this yr to not do a special christmas card for Nancy(barlochan) and I know when I hang her ornaments on my little tree she sure will come to mind. But at least she's watching us from above.
Well I'll sign off for now, don't want to babble on too much. Hey, if anyone has some extra warm weather we could use a bit here LOL.
Replies
Lots of hugs to you my friend, it must be so hard for you with the pain you have to deal with and having Lupus. It is hard at times and one does feel down, I think sometimes what illness does this. You are so sweet to do those cards for Nancy (barlochan) I am the same there with the ornaments, She sent me a snowman last year, and this year when I put it on my tree I will really be thinking about her. I still have all her cards on my cupboard door and sometimes read them and then feel sad. But I know she is smiling down on us. Hugs xx
Prayers and hugs for you and hubbie! Appreciate hearing your news and status. Lovely legacy from Nancy as her ornaments sparkle on your tree. That is so sweet. Do you have your tree all ready then? She\'s an angel.
Hugs to you K.... love ya.
I\'ve been thinking about you. I\'m happy to have an update. I know, we should expect these flares, but I am like you, I can\'t accept them when they come and I act like someone who was run over on the sidewalk by a car, as if I had no clue it was coming LOL. I pray that all is well with hubby. I prayed for you and yours during our healing service at church last Sunday. It\'s sad when we realize at Christmas how many of our friends have left us. I\'d like to bury my head in the sand about that for sure. I used to buy so many gifts, but now my list is smaller. : (
I hope you continue on the upward path of feeling better. Hope your holiday is lovely and peaceful and bright. lots of love!
What a nice surprise to see a journal from you.I will pray for Mel. I too hope you start to feel better and can enjoy the holiday\'s with friends and family. Keep me posted on everything!! Love and peace and health to you my precious friend. Love, Frieda