learning a new normal

Today is my first journal entry. I am hoping to connect with other sjogren's patients here or other groups of my interests. I have a lot of central nervous system involvement 24/7. I have that uncomfortable creepy crawly feeling up and down my spine today. My husband is off today which was nice. He put icy hot on my spine. It won't stop it but it helps a bit. Maybe just the distraction of the icy hot helps. Muscle relaxer is starting to work and worse come to worse I will lay in the tub with hot water. My three kids will be home soon and I am not in the mood to be laying around. Feels like restless legs but of the spine. I am excited for tomorrow because I am getting new living room furniture . Been without a recliner for a while and have to resort to laying in bed a lot due to multiple back surgeries. Not sure that anyone but me will read this or if anyone can/ will relate or even respond. I am isolated. I have been disabled for about 7 years now. I have a handful of close friends that all work and have families. My support system is mostly my husband and a few friends. I have no family to speak of and am lonely as I have nothing in common with other soccer mom's of my age. I can not keep up physically with them. Feel much older than I am. Have been through more at 39 than most. I am mainly a positive person but like all I have my bad days. I am Christian and have a very strong faith that has gotten me through tons. This year was the worst of my life and I am so glad things are finally on the upswing. Looking forward to Christmas and a Happy New Year. Can't wait to see 2014.