So, now we know. He has Acromegaly. We both are coming out of shock and getting down to business. Endo visit tomorrow. 2 neuro surgeons appts. Please God make sure we are sent to the right surgeon for him.
Don\'t worry about things too much -- I felt SO much better after surgery. Symptoms started to lift within hours of surgery, and I am not joking when I say that. It was so good being able to go to sleep not having to fear waking up choking unable to breathe! Just make sure your neurosurgeon specialises in pituitary tumours. He should have hundreds of them under his belt and do them regularly. Don\'t be afraid to ask.
Thank you so much. I have narrowed my search down to a neurosurgeon at University of Miami neurosugeon department. There are at least 6 doctors to choose from. Of course, I can\'t get an answer over the phone on how many pituitary tumors they have done. I have an appointment with one of them June 25 but I called another ones secretary and asked her to please give her boss my husbands info so they can tell me which doctor to go to. I do not want to go there on June 25 and then they say \"so and so would be better for this surgery, I would make an appointment with them. Then I feel like we wasted our time. Hopefully, somebody figures out something before our appointment. Thanks again. Oh and my husband needs double hernia surgery too. In your opinion would you have been able to go thru another surgery right after this one? Like in a week or two?
With any kind of surgery of this nature (because you usually get one shot at it), I would recommend broadening the scope of your research and find the best of the best...and go there.
The Skull base Institute in Pittsburgh may be one place and UCSF (University of California San Francisco) have centers of excellence in this type of case.
My Neurosurgeon is from the Semmes-Murphy group in Memphis...who is now in private practice. Were I to have the surgery, it would be him most likely due to his experience.
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Don\'t worry about things too much -- I felt SO much better after surgery. Symptoms started to lift within hours of surgery, and I am not joking when I say that. It was so good being able to go to sleep not having to fear waking up choking unable to breathe! Just make sure your neurosurgeon specialises in pituitary tumours. He should have hundreds of them under his belt and do them regularly. Don\'t be afraid to ask.
Thank you so much. I have narrowed my search down to a neurosurgeon at University of Miami neurosugeon department. There are at least 6 doctors to choose from. Of course, I can\'t get an answer over the phone on how many pituitary tumors they have done. I have an appointment with one of them June 25 but I called another ones secretary and asked her to please give her boss my husbands info so they can tell me which doctor to go to. I do not want to go there on June 25 and then they say \"so and so would be better for this surgery, I would make an appointment with them. Then I feel like we wasted our time. Hopefully, somebody figures out something before our appointment. Thanks again. Oh and my husband needs double hernia surgery too. In your opinion would you have been able to go thru another surgery right after this one? Like in a week or two?
With any kind of surgery of this nature (because you usually get one shot at it), I would recommend broadening the scope of your research and find the best of the best...and go there.
The Skull base Institute in Pittsburgh may be one place and UCSF (University of California San Francisco) have centers of excellence in this type of case.
My Neurosurgeon is from the Semmes-Murphy group in Memphis...who is now in private practice. Were I to have the surgery, it would be him most likely due to his experience.