In shock

I am in shock as to what this fibro pain is doing to me and my life. I am having a very difficult time doing anything lately because of the pain and weakness.  I hurt everywhere except my ear lobes---maybe I shouldn't say that cuz they will be hurting next! I am missing too much time from work and being a single parent, I worry constantly about losing my job and then losing my house.  Going to be starting a new medicine again soon (Savella) and hoping this will help. Nothing else has. I take pain medication but it doesn't stop the pain, lowers it in a few areas. I am so sad with all this and then add financial problems, stress, etc. well it's just a cocktail for a unhappy lady (name Carol, lol).  I was told there is "fibro fog" but I feel mine goes beyond that. I misspell and even type the wrong words at work a lot and I am so forgetful I am surprised I walk out of the house with my shoes on.  I was telling someone at work about my diagnoses and the minute she hears Fibro, she made a face and was like...so you worry yourself into pain uh?  I was like, "What did you just say to me??" wasn't pleasant, lol. Anyways, sorry for the the ranting and raving, I just needed to get just a little bit out (and trust me, that was just a little, lol).  Peace

Replies

deleted_user
deleted_user

Sorry to hear you are suffering so much right now but it does appear you are in the midst of a flare & it is major. You are describing how all of us are either feeling or have felt at times. People who have only heard of fibro don\'t have any idea of how you feel. They understand cancer, RA & even Aids but have no idea how much we can & do hurt.

If you need to share more, why don\'t you send me a PM & I will be glad to share with you.

Right now, I will be praying for you.

1sugarbear (Mike)
sunsetzzs
sunsetzzs

Carol, I\'m so sorry that things are so rough right now. I know how you feel with the pain and fog, and most likely fatigue, too. I had to stop working about a year ago because of it, which makes me feel all the more for you to not be able to.
I am on Morphine, 30 mg, twice a day, and also Prozac, which is an anti-depressant, that I also take for pain relief. The two together have made a small difference for me, but even though small, it\'s the only help meds have given me thus far. The Morphine is a long acting narcotic to stop the ups and downs of pain relievers working for only a couple of hours and then spiking up again. The idea here is to maintain longer periods of relief. So, just an idea that I\'m sharing with you in case you have not considered this. I know narcotics are not for everyone, but this low dosage has not been an issue for me.
Otherwise, all I can do is say prayers for you to get some relief in your pain, strength to carry on each day, and for the fog to go away. Which I will do :)!
That co-worker was not very nice. I have taken to educating people with that kind of attitude. Kind of like, Oh really, what makes you have that opinion? What do you know about fibromyalgia first hand? Gah! People can be so judgemental and insensitive.
Gentle hugs,
Sherry
jorgee
jorgee

I am so sorry you are dealing with all of this....and I hate to say this...but, I can sure \"relate\" to everything you are saying....it sounds so familiar! I was dx in 95\' and finally had to file for SSDI in 08\'....the pain was making it unbearable to work.....and yes....the fibro fog is something we all have and deal with. This all goes hand in hand when dealing with this stuff! :o( I really feel for you....it is so hard to try and work...along with other responsibilities we have in life.....you DO and WILL need something more then pain killers....and some work and some do not....it is so different for everyone.....I hope when you get started on Savella....you will find some relief in other ways....as far as coping with this illness. Everyone is different I suppose different degrees and how quickly it progresses varies in everyone. That was SO cruel what the person at work said to you....they do not understand this illness at all. This is why this DS site is so wonderful....we GET it!!!! You can rant and rave all you want to girl!!! :o) Chronic pain is very dibilitating....my heart aches for you and all you are dealing with, Carol. I hope you have a good Dr. who really knows and understands this illness....many of us have had to file for SSDI becuz we just could not work anymore. This may be something you will be facing in your future....it is scary, I know....but, I am here to tell you that when God closes one door in your life....soon, another opens....and you can be happy again! :o) If you ever want to visit...please msg me anytime....I care and I am here for you. I am on the CFF group...so supportive and family like....I have seen you post on there, too! Just know I am a friend and I \"get it\" and I care about you and your situation....never feel alone! Take care and I hope you feel better....there are many things to try out there to help with pain...I hope you find what works well for you....kind of trial and error, some days better then others....learning balance in your life is so important and hard to do.....especially with being a single mom and the stresses of everyday life.....God Bless and remember...I am here for you! Love and Hugs~Tory
deleted_user
deleted_user

i\'m sorry you are having such a hard time. the pain, the stress the weakness, then the stupid people. I totally understand and pray for peace for you. hugs polly
RosePark
RosePark

I hope you find the right medication to help with your pain! I am so sorry you are suffering with this. Keep up the good work - trust the Lord and He will give you the strength.
deleted_user
deleted_user

Oh! I\'m so sorry to hear you haven\'t been feeling well. I\'ve been through some pretty rough days myself but hopefully I\'ll had a definitive diagnosis next week. Have you tried sublingual Ketorolac tromethamine? I don\'t know if they have it in the US under this presentation but it\'s the only thing that really take away my pain. It\'s like those old nitroglycerin pills. You just put it under your tongue and it takes effect in less than 15 mins.
Wishing you the best....
Silvia
lilacs22
lilacs22

Thank you to everyone for all your wonderful replies!!! I can\'t even begin to express how incredible I find all your words of encouragement and support and how much it helps to make it through the rough days. You all are so truly beautiful and I am very blessed to have you as my friends here on DS. I thank God everyday for having found all of you. I wish I could describe how important all your replies are to me, but words fail me. I hope in your time of need, I can be there for all of you too. Hugs and Kisses, Carol