If you are reading this You have chosen my group: I have TTP
Hello all. I am DeviousIntent. I have had TTP for short time. My diagnosis was at the ER on October 28th 2008. I'll never forget that date any time soon. After have heavy mentral bleeding for like 3 days I suddenly was hit with what I thought were flu symptoms. for like another 3 days. By the time my fiance began to think that something was wrong he cam home from work to find the recliner chair I sit in on its back. And my laptop on it's top- All this according to him as by the 5th day I have very little memory of how I was acting. I remember seeing myself in the mirror from timr to time to see how pale I was, but I had never had the flu before so I assumed that was part of it. He found me that day curled up on the floor. Said he thinks I had a ceasure as he had seen them before and I showed signs. The Doctors agreed. When I got to the ER I was diagnosed in 15 minutes, I hear.Was in a city we don't live in for his job- I also hear the hospital I went to is the best in Ohio- saved my life. I was enimic;my kindneys were failing; other organs they say were next; I had bruises for days that I couldn't explain; They had to put me on the resperator for like 4 days and all they did for that time was tell my fiance and my family that they could lose me. I am in remission now they tell me, but at the same time they are saying that I am not well and have to continue my plasmapherisis treatments. I am off the steriods as of yesterday and will be started soon on a med to help with my weak immune system. I think this is permanent- That brings me to my need for a support group... My Fears about the future I guess. Been having lots of anxioty attacks. My main thing that I can't seem to accept is that I'm 26 and sick now for life.. and my new life is keepin up on the treatmetments; goin to dr appt. and getting blood testested and then what ever else they tell me to do. I mean I'll do it but. I also wonder now in the back of my mind all the time about if there is a relapse in my future when and how bad-life threatening- will it be. Those of you who have signed on for this group, I suspect you all have the same fears. So come on, let us all meet oneanother and vent on here.. Let us all be brave and accept this thing we all have in common. Also I plan to post as much info as I can find on TTP for all to read. Thhank you DeviousIntent
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