I'll call this the Magpie Journal
Magpies pick up interesting tidbits--- whatever catches their eye.
I know what is said about Magpies; that they attack the eyes of a person near their nest, is just one.
I don't. But I hope I 'attack' the brain. (grin)
Mostly though, I just collect orts, pick them up and see if they might be something I want to keep or read about further.
Since this journal is in a group about pulmonary embolism, there's bound to be many medical references. But there will also be some jokes or funny/strange stories. But usually it's just what's taken my eye/brain for the moment.
Right at this moment, I'm looking into the funding for certain entities. I see that those wonderful people who brought the birth control patch is also a sponsor/partner to stoptheclot.org.
Ortho-McNeill has paid its price for that (dearly!) And I'm sure that stoptheclot has assured that Ortho-McNeill's products will be safe for all people at DS.
The good news is:
CDC AWARDS NATT FUNDINGTO IMPROVE BLOOD CLOT AWARENESSThrombosis Declared Priority by CDCNATT was awarded two major grants totaling $1.35 million from the Centers for DiseaseControl and Prevention (CDC)
That was just this month and let's hope that the money will be used judiciously in research. But:
"The first grant will support the Stop the ClotTM Learning Project that will enableNATT in cooperation with CDC, to carry out the following
• Implement Stop the ClotTM Forums for patients and families
• Initiate Stop the ClotTM support groups
• Create a Clotting Information and Resource Center (CIRC) that will have an interactiveWeb site and Webinars"
I thought that the first two bullet points were already established. But the third one sounds interesting.
Yahoo will allow support groups for nothing.
NING ---- a web site for almost nothing per month.
(Just a few suggestions to save money.)
********************************************
I wonder how many people with PE (present and past) have adjusted their warfarin dose without consulting with their doctor or nurse.
I've seen mention of this several times in the discussions.
I wouldn't myself.
Is this a good message to be sending to newcomers especially?
Edit----- evidently some 'old timers' do adjust their dose on their own.
Usually they have tacit approval from their doctor since they're considered 'reliable' patients. But----- do newcomers know that? We all know how few threads are read (or understood) correctly.
I know what is said about Magpies; that they attack the eyes of a person near their nest, is just one.
I don't. But I hope I 'attack' the brain. (grin)
Mostly though, I just collect orts, pick them up and see if they might be something I want to keep or read about further.
Since this journal is in a group about pulmonary embolism, there's bound to be many medical references. But there will also be some jokes or funny/strange stories. But usually it's just what's taken my eye/brain for the moment.
Right at this moment, I'm looking into the funding for certain entities. I see that those wonderful people who brought the birth control patch is also a sponsor/partner to stoptheclot.org.
Ortho-McNeill has paid its price for that (dearly!) And I'm sure that stoptheclot has assured that Ortho-McNeill's products will be safe for all people at DS.
The good news is:
CDC AWARDS NATT FUNDINGTO IMPROVE BLOOD CLOT AWARENESSThrombosis Declared Priority by CDCNATT was awarded two major grants totaling $1.35 million from the Centers for DiseaseControl and Prevention (CDC)
That was just this month and let's hope that the money will be used judiciously in research. But:
"The first grant will support the Stop the ClotTM Learning Project that will enableNATT in cooperation with CDC, to carry out the following
• Implement Stop the ClotTM Forums for patients and families
• Initiate Stop the ClotTM support groups
• Create a Clotting Information and Resource Center (CIRC) that will have an interactiveWeb site and Webinars"
I thought that the first two bullet points were already established. But the third one sounds interesting.
Yahoo will allow support groups for nothing.
NING ---- a web site for almost nothing per month.
(Just a few suggestions to save money.)
********************************************
I wonder how many people with PE (present and past) have adjusted their warfarin dose without consulting with their doctor or nurse.
I've seen mention of this several times in the discussions.
I wouldn't myself.
Is this a good message to be sending to newcomers especially?
Edit----- evidently some 'old timers' do adjust their dose on their own.
Usually they have tacit approval from their doctor since they're considered 'reliable' patients. But----- do newcomers know that? We all know how few threads are read (or understood) correctly.
Replies
Cavey, first, I\'m not a representative from STC, I\'m here on my own accord. Secondly, my posting regarding discussing family history of clotting episodes was spoken out of term because I didn\'t thoroughly read the whole thread. I was under the impression that there \"was\" a family history so based on that I did concur with the previous poster to discuss that with her physician. I did not know the poster was suggesting that the person tell that to her doctor she had a family history just to get him to perform thrombophilia testing.
I have clarified my comment on that thread to avoid that confusion and so the reader understand where I was coming from.