I just don't understand.......
why can't i get any help? why do doctors expose you to quests for treatments and then, when you can't work, function or even think, they turn their back on you?
i'm sure this is not true in every area, but it is certainly true in mine. all i ever asked for was for help to maintain some kind of normalcy.
i have lost my home, repeatedly, my job repeatedly and have cordoned myself off from most of society. i think because i was/am unable to think straight, due to the pain and stress from my condition. but here's the kicker.....no one will help me! i just don't get it.
i know that i should be thankful for what i have (nothing) which in itself is probably a blessing, because if you don't have anything, you can't lose anything.
i could go on but it would only dampen my spirits....what i regret the most about this whole venture is that i don't have the energy to spend the the quality time i want and need to with my children and grandson.
when all is said and done, now that i have rightfully pointed out the mistakes that all most took my life, instead of the dr using it as a learning experience, they have blackballed me in this community.....so now i just die a slow and painful death everyday.......why does this have to ME?
i'm sure this is not true in every area, but it is certainly true in mine. all i ever asked for was for help to maintain some kind of normalcy.
i have lost my home, repeatedly, my job repeatedly and have cordoned myself off from most of society. i think because i was/am unable to think straight, due to the pain and stress from my condition. but here's the kicker.....no one will help me! i just don't get it.
i know that i should be thankful for what i have (nothing) which in itself is probably a blessing, because if you don't have anything, you can't lose anything.
i could go on but it would only dampen my spirits....what i regret the most about this whole venture is that i don't have the energy to spend the the quality time i want and need to with my children and grandson.
when all is said and done, now that i have rightfully pointed out the mistakes that all most took my life, instead of the dr using it as a learning experience, they have blackballed me in this community.....so now i just die a slow and painful death everyday.......why does this have to ME?
Replies
Hi. You are not alone. Of course the doctors would blackball you. Take comfort that you\'re not the only one this has happened to. It\'s much easier for doctors to make you the problem, rather than to admit that they didn\'t know the answer. The problem is that conventional doctors don\'t know how to think out of the box. When you present with symptoms that don\'t fit into their narrow schema of understanding, they try to force-fit you into one of the diagnoses they\'re already comfortable with. Except it\'s not a real good fit. Sometimes it\'s harmful - the \"treatment\" making you even sicker. One doctor refers you on to another, each time you are worse off, more frustrated, a little angrier... They sense that, and it gets in the way of how they perceive you (and your problem which they still don\'t have a handle on). This bias transfers over with a new referral to yet another specialist, and the new doctor is judging you before even meeting you. Either you\'re a \"difficult\" patient, or you\'re a \"crazy\" one. In my experience, doctors don\'t like it if you are more knowledgeable than they are. They prefer to have the upper hand - especially the older doc\'s. (I had one who completely misrepresented me, and my symptoms - in his summary of the visit... I was furious. I mean what they write is a permanent record. I talked to the nurse who sympathized, and told me - off the record - \"He\'s old school; arrogant old fart; He\'s from the \'Because-I-said-so-school\'.\") The other problem is that because they haven\'t been able to diagnose you, you\'ve gotten sicker, and likewise your story has gotten longer... Each time you go to see a new doc, you\'ve got more that you need to convey, and how can you - in the little 15 minute time-slot?! So you get anxious and distressed trying to make your story make sense - because by this point everything you\'ve gone through is pretty unbelievable, so you\'re frazzled and nervous in front of them - and they see that too... It\'s a nightmare. And all you want is to get well. Isn\'t that their job? You go to them for help, and they \"categorize\" you. You\'d have been better off not to have gone at all. I\'m scared-of-doctor\'s too.
Listen, here\'s my advice to you. Find a doctor who also specializes in functional medicine or alternative medicine. They will give you the time of day. They will give you time.
wow....thanks.....i\'ve had so many ppl tell me to stop whinning and just deal with it, that your response is so amazing.
when i flare up, there is not a morning that goes by that i am not disappointed that i didn\'t wake up dead, because.......over the last ten yrs, my condition has been so dismissed, that i won\'t even go to the er even when i\'m rolling around on the floor from pain.....i just wait it out and let it pass, which takes days sometimes.
thank you dalara for understanding, that is some of the best mental relief i have ever had.
are you a victim of HH?
Hi scaredofdrs. I have a similar story. I have been going to Drs or PA\'s for 3 yrs and nothing happens. Let me know if you find a dr in functional or alternative medicine and how that goes for you. I know how frustrating it can be. When I get really angry I cry. So its really hard to say what I want.