I AM SOOO EXHAUSTED, 24/7!!
FIRST OFF I WANT TO SAY THAT I NOW HAVE OVER 200 NAMES FOR MY PETITION!!! AND I AM STILL AT IT, I AM VERY PROUD OF MYSELF AND ALL THAT I HAVE ACHIEVED!! RIGHT NOW IT IS VERY QUIET , SO I ASSUME THAT SOMETHING WILL HAPPEN IN THE NEAR FUTURE, FOR US ALL! I HAVE NOT BEEN FEELING VERY WELL AT ALL FOR THE PAST FEW WEEKS!! I AM THROUGHLY EXHAUSTED AND WHEN I DO GET UP FOR THE DAY, I AM UP FOR JUST AN HOUR OR TWO AND HAVE TO GO BACK TO BED TO SLEEP!! AS, I FEEL COMPLETELY DRAINED AND CANNOT KEEP MY EYES OPEN!! IT ISN'T FROM OVER WORK RE: THE PETITIONS AS I HAVE THEM SITTING AT A STORE NEAR MY HOME. AND I CHECK THEM EVERY FEW DAYS. MY PAIN LEVEL FOR THE PAST FEW DAYS HAS IMPROVED TO A MORE MANAGEABLE LEVEL, YAY!! DUE TO AN I.V. I HAD OF LIDOCAINE AT MY DR.S OFFICE LAST THURSDAY, IT FINALLY WORKED FOR ME AT A LOWER DOSAGE, SO I PRAY THAT IT WILL LAST FOR A WHILE LONGER!! SO MY LEVEL OF PAIN WHICH WAS LIKE A 8-9/10 IS NOW FOR THE PAST FEW DAYS ABOUT A 4/10! I AM VERY HAPPY ABOUT THAT! IT WAS VERY WEIRD THOUGH AFTER I HAD BEEN ON THE I.V. FOR BASICALLY 2HRS. I HAD FELL ASLEEP, AND WOKE UP SOOOO STONED IT FELT LIKE!!! MY DR. AND HIS NURSE HAVE NEVER SEEN ANYONE REACT THIS WAY TO THE MEDICATION BEFORE SO HE WAS VERY CONCERNED FOR ME. I COULDN'T EVEN FOCUS AND I WAS SPINNING LIKE A TOP, SLURRING MY WORDS, AND I COULDN'T HOLD MY OWN HEAD UP STRAIGHT!! IT EITHER FELL TO THE LEFT OR THE RIGHT OR RIGHT DOWN TO MY CHIN!! I ALSO STARTED CRYING AS I FELT SOOO WEIRD!! THEY KEPT ME IN HIS OFFICE FOR OVER ANOTHER HOUR AND STAYED WELL INTO THE EVENING AND THEN TERRY MY HUSBAND CAME AND GOT ME, AND DROVE ME HOME. BUT THEY WOULDN'T LET ME LEAVE UNTIL I WAS MORE ALERT. WHEN I GOT HOME I CRASHED IN MY BED FOR ANOTHER 2-3HRS!! WAKING UP AND FEELING GROGGY BUT WITHOUT MUCH PAIN AT ALL!! UNBELIEVABLE! SO, NOW WITH THE PAIN LEVEL MUCH LOWER I HAD WISHED THAT I COULD GET SOME OF MY HOUSE WORK DONE THAT I HAVE NOT BEEN ABLE TO DO WITH THE SEVERE PAIN AND TIREDNESS. BUT NO, I HAVE THIS SEVERE EXHAUSTION AND I GET SOOO EXHAUSTED IT IS EVEN TOO MUCH ENERGY TO EVEN TALK!! I AM SCARED!! I DON'T KNOW WHAT IS HAPPENING TO ME?? LIKE IS MY CHRONIC FATIGUE THAT MUCH WORSE NOW?? THAT I CAN'T EVEN FUNCTION, DRIVE? OR DO ANYTHING IN MY HOME AND EVEN TO THINK CLEAR ENOUGH TO MAKE THE SIMPLIST DECISIONS??? I WANTED TO ASK ANY OF YOU IF YOU HAVE EVER FELT LIKE THIS?? AND FOR HOW LONG?? AND WHAT IT IS CAUSED BY?? I REALLY CAN'T SEE IT BEING JUST CHRONIC FATIGUE!!! I KNOW THAT I AM VERY DEPRESSED STILL OVER THE LOSS OF MY PRECIOUS LITTLE DOGGIE, AND ALSO DOWN BECAUSE MY YOUNGEST DAUGHTER (CRYSTAL) IS STILL NOT TALKING TO ME, AND NOT LETTING US SEE OUR GRANDCHILDREN, STILL!!!! IT HURTS SOOO VERY MUCH!! THE OTHER THING THIS COMPLETE LOSS OF ENERGY HAS BEEN DOING TO ME IS NOT LETTING ME DO ANY CHORES I NEED TO DO!! I CAN'T EVEN HAVE THE ENERGY TO EVEN MAKE SUPPER FOR MY DEAR HUSBAND AFTER HE HAS WORKED A VERY LONG DAY!! I CARRY SOOO MUCH GUILT FOR THIS AND OTHER THINGS AROUND THE HOUSE THAT I CANNOT FULFILL, AS A LOVING WIFE FOR MY PRECIOUS HUSBAND!! AND I AM FINDING IT VERY, DIFFICULT TO EVEN GET OUT OF THE HOUSE EVEN FOR APPTS. AS I DO NOT HAVE THE ENERGY TO EVEN GET DRESSED AND GET MYSELF READY!! IT IS AN ABSOLUTE STRUGGLE TO EVEN HAVE A BATH AND BRUSH MY TEETH EVERYDAY!! I AM GETTING MUCH MORE DEPRESSED OVER ALL OF THIS, THIS IS NOT ME!! IT IS SCARING ME SOOO VERY MUCH!! I FEEL LIKE I AM DYING AND I AM OUT OF CONTROL! IT IS CONTROLLING ME!! I BEG ANYONE THAT READS THIS JOURNAL TO PLEASE LET ME KNOW IF THEY HAVE EVER GONE THROUGH ANYTHING LIKE THIS, OR IF THEY HAVE ANY IDEA WHAT THE HECK IS GOING ON WITH ME?? I AM GOING TO BE GOING TO A DR. APPT. NEAR THE END OF THE MONTH SO I HOPE IF IT ISN'T GONE BY THEN I WILL BE ABLE TO MAYBE FIND SOME REASON FOR THIS GUILT RIDDEN EXHAUSTION!!!! I FEEL LIKE SITTING ON THE FLOOR AND JUST CRYING MY EYES OUT OVER THIS, PLEASE, PLEASE ANYONE PUT A COMMENT IN AND LET ME KNOW WHAT YOU THINK?? THANKYOU VERY MUCH I AM DESPERATE AND VERY SCARED THAT I AM DYING!!! THANKS FOR BEING MY FRIEND! BYE FOR NOW LOVE SUE XXXXOOO
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Do you think depression you are suffering from needs treatment with medication? Anything goes with symptoms of depression. My depression got really bad and I couldn\'t even do my dishes. Such a simple task. And I didn\'t feel like wanting to brush my teeth, was to much effort.
DBAIN, (I ALWAYS TYPE IN CAPS, SO I CAN READ IT LOL) ANYWAY, THANKS FOR THE INPUT. BUT I AM SORRY TO SAY THAT YOU HAVE IT ALL WRONG, I AM NOT SEVERELY DEPRESSED,I HAVE CHRONIC FATIGUE VERY BAD. AND IF YOU READ SOME OF MY OTHER COMMENTS YOU WILL SEE THAT OTHERS THAT SUFFER FROM THIS TERRIBLY IRRITATING ILLNESS, FEEL MUCH THE SAME AS I, AND OTHERS MUCH, MUCH WORSE. I KNOW WHEN I HAVE SEVERE DEPRESSION, I ALSO HAVE BEEN THERE, WHERE I HAVE NOT BEEN ABLE TO EVEN GET OFF MY COUCH WITH THE DISABLING ILLNESS ALSO. BUT THIS TIME IT IS DIFFERENT, I DO AS MUCH AS I CAN AROUND MY HOUSE AND MY ERRANDS. IT IS JUST THAT I AM DRAGGING MY ASS WITH SUCH TIREDNESS. SOME DAYS I WILL LAY DOWN FOR AN HOUR AND GET UP FEELING SOME RELIEF FOR A WHILE AND HAVE A BIT OF ENERGY TO DO WHAT I HAVE TO DO. I REALLY ALSO DON\'T THINK THAT YOUR SISTER IS USING LUPUS AS A CRUTCH, IT IS ALSO A TERRIBLY DISABLING ILLNESS. JUST WANTED TO SAY A BIT MORE ABOUT MY SITUATION, AND YES I AM ON ANTI-DEPRESSANTS THAT ARE HELPING VERY MUCH! SUE
P.S. I WOULD LIKE IT IF YOU BOTH LOOKED AT THE QUESTION I PROPOSED ON THE DISCUSSION BOARD RE: CHRONIC FATIGUE AND SEE WHAT THE OTHER SUFFERERS ARE REALLY GOING THROUGH AND WHAT THEY HAVE SEEN, THANKYOU.
PPSS. THE QUESTION WAS \"DOES CHRONIC FATIGUE REALLY GET THIS BAD???\"
I commented on your post on the board that I take Adderall and Provigil for my debilitating fatigue just like you have. I can now function everyday, go to work full time, help raise my 4 year old, clean and cook. It has been amazing for me I am so grateful my Dr put me on these meds. I have taken them over a year and it has been wonderful.
Hey Sue, this is your long lost ds friend,Korynne!!Good for you standing up to that woman that wrote re:your feelings,and even saying her sister has lupus,and maybe uses it as a crutch!!!Her poor sister!! Why do people even come on here when they just add to your misery,instead of letting you ask for POSITIVE advice,and opinions??? I wonder if maybe your hormones arent a bit out of sorts?? I was feeling the same way,and a wonderful lady on here named Jen,said she totally got it,and suggested I get checked. I did and that was what was going on. Remember sweetie-we are at that age now,and it took a lady on ds to help me through. Let me know.Also,with all the pain and chronic fatigue with fibro,and you put on the list screwed up hormones,its alot to handle!! Your FRIEND:Korynne
THANKS FOR THE COMMENT KORYNNE, BUT SORRY TO SAY THAT MY SO CALLED HORMONES HAVE BEEN SCREWED UP FOR ABOUT 18YEARS!!! I HAD TO HAVE A COMPLETE HYSTERECTOMY OVARIES INCLUDED, BECAUSE OF ENDOMETRIOSIS. AND YES I AM ON HORMONE REPLACEMENT MEDS. I REALLY BELIEVE THAT THIS IS STEMMING FROM AS THE MANY OTHERS THAT HAVE REPLIED THAT CHRONIC FATIGUE DOES GET THAT BAD!! MANY PEOPLE HAVE SENT ME MESSAGES THAT THEY AND MANY OTHERS THEY KNOW HAVE BEEN EVEN ON MONTHS OF BEDREST DUE TO THIS TERRIBLE ILLNESS CHRONIC FATIGUE!! AS OF TODAY, OCT.6TH I AM STARTING TO FEEL MUCH BETTER THAN I WAS. THANKS KORYNNE AND ALL THAT HAVE RESPONDED TO MY CRY FOR HELP AND UNDERSTANDING TO THIS EXHAUSTING ILLNESS!!! SUE XXXXOOOO
P.S. PLEASE READ ALL MY RESPONSES TO MY QUESTION \"DOES CHRONIC FATIGUE GET THIS BAD????\" THANKS
PPSS. ACTUALLY THE TITLE ON THE DISCUSSION BOARD THAT I HAD ASKED RE: BEING SOOOO EXHAUSTED AND \"CHRONIC FATIGUE AND HOW BAD CAN IT GET?\" YOU CAN VIEW MY MANY RESPONSES WHICH WILL EXPLAIN WHY I AM SOOO EXHAUSTED 24/7! THANKS AGAIN SUE