I am back,,,well at least for now...........

Well it has been a while , not been doing much just trying to keep my head up and not look back . But that seems to be hard to do when dealing with doctors all the time . The thing that I am having a hard time dealing with now is my Dad and his stuborness about getting any help for my Mom . If she has a doctors appointment then I have to take her because he refuses to . He is the one that is around her all the time and knows what she is going through but he just will not go with her . I just don`t understand him and his hatred of doctors!!!!!  I have even ask him if he would consider having someone come to thier home and help out with taking care of her some of the time, I am not talking an everyday thing just once or twice a week so that he can have a break . If one of the family (ie..me or my brother ) comes out then he thinks that he has to stay there and visit but then the minute we get to our home we get a phone call from him saying that he is having more problems with her and could we talk to her and try and calm her down. That would be fine but then he is in the background after we get her calmed down trying to reason with her. He just dosen`t get it that she can`t understand what is going on and to me she is living in some kind of dream world , or reliving something that happened in her past . Dealing with this and my own health problems has been a whirlwind to say the least .. Just this past Monday I ended up in the ER because of some kind of stomach and back pain , my stomach swelled up and I thought I was going to pop and the pain was like some one was stabbing me very low on the left lower stomach area ,and my spine felt like it was on fire from the base of my head to my tail . When the ER doc found out that I have SM and had a shunt in my neck he just dropped the subject and tried to blow it off as some kind of flu and the usual aches and pains that come with it . The nurse that I had though has a brother that has SM and she talked the doc into giving me some demarol for the pain and then before I went home gave me another pain shot of some other kind . In all total we were at the ER from 5pm until 2:30am for two shots and a CT scan of my stomach and pelvis . Can you say fun time at the ER.......I am beging to believe that no doctors in New Mexico know a thing about SM and what it does to you . So far every doctor that I have seen has told me that I should go back to the NS that treated me for it in Denver,the problem with that is he is somewhere in California and the practice where he worked in Denver dosen`t have anyone qualified to treat me anymore. The NS that I saw in Lubbock and in Albuqurque both think I would be better off going back to Denver . I don`t think that the NS in Lubbock ever understood that I wasn`t asking for more surgery but that my NS that was in Denver told me that I needed to find a NS close to where I live now and get him /her accouinted with my case just in case something went wrong like the shunt stops working or I develope more symptoms .And then on top of everything else my SSDI is probably comming up for review , and now all this crap that Obama is trying to get passed through congress is really starting to scare the crap out of me . I thought that this Government was supposed to be of the people and by the people . Looks like he is trying to get what he and others want and to heck with us that really need the help . I mean I have worked some 28 years and paid my taxes like I should ,I even went back to work after 4 doctors in Denver told me that I should never work agian (that was in 1992) ,I worked until "05 "when the doc told me if I went back to work I would just be killing myself and after thinking and praying for a long time I knew that they were right .I guess I better get off of here before I blow a gasket and end up back in the ER agian.