I am back and ready to ... sit down and breathe!
I am back - I hope.
Thanks to all of you who left me sweet words of comfort and hugs! While I didn't have the time (mostly the energy) to respond back, I did read them and my heart was warmed by them. I have missed participating and keeping in touch with everyone here. But I am ready to jump back in now and catch up on the happenings.
Here is my update. The funeral for my mother-in-law went well. While we miss her we all are glad she is in a better place and is no longer encumbered in her worn out body. She was (is) a special lady and has left us quite a legacy to remember.
My son is doing better in some ways - worse in other ways. We are doing what we can to help and turning the rest over to God. They found that the combination of drugs they put him on was causing the panic attacks and, suprisingly, also a lot of the painful muscle spasms. So pain wise - he is doing better, but he still can not return to work (he does heavy manual labor at work) so financially things are really bad for him. He seems to be one of those kids that wears a sign on his back - "hurt me please - my life is not sucky enough yet". The worries never go away with our kids do they! They just seem to multiply as their families grow.
As for me - as you can guess - all of this has hyped my symtoms a bit. The shaking makes me feel like a nervous wreck even when I am calm. I have been off kilter with my exercise schedule and of course eating poorly (a lot of emotional sugar loaded junk eating). This week of getting back on a sort of reg. schedule is helping calm the tremors down a bit. I have also been having more foot cramps lately so I am hoping getting back on track with the exercise will help with those too. I had one on my right side last week, which is a first. (it is not progressing, it is not progressing, it is not....) If I say it over and over again, does it make it true??? Well - it works for politicians!!!
I have another PPMI study appointment this week. My husband, who was gently pursuaded to also be a guinie pig, and I will be having side be side lumbar punctures. Doesn't that sound romantic?? lol At our age - it is!!!! With this procesdure I will meet the goal of staying med free for the PPMI tests wanted. So after this appt I will begin to travel the meds road. I am so excited! NOT!!!!!!!! Actually, I am dreading this phase and if I could figure out a way to not do meds - I would go that route instead. But I see no alternatives at this point. ( sighs and deep breaths) Not to worry though - my doctor has decided to help me delay my anxiousness on the med situation. I can not get an appointment with him and am being told they are not opening his schedule again until sometime in July and they will call me when they open it up. HHMMPPff... wonder what would happen if I really needed to see him??? Oh well - I live with the symptoms as is for awhile longer and quit worrying about the meds road until then.
Enough of my update. Now I can get busy with reading whats been going on with you all.
Hugs to everyone here!
Thanks to all of you who left me sweet words of comfort and hugs! While I didn't have the time (mostly the energy) to respond back, I did read them and my heart was warmed by them. I have missed participating and keeping in touch with everyone here. But I am ready to jump back in now and catch up on the happenings.
Here is my update. The funeral for my mother-in-law went well. While we miss her we all are glad she is in a better place and is no longer encumbered in her worn out body. She was (is) a special lady and has left us quite a legacy to remember.
My son is doing better in some ways - worse in other ways. We are doing what we can to help and turning the rest over to God. They found that the combination of drugs they put him on was causing the panic attacks and, suprisingly, also a lot of the painful muscle spasms. So pain wise - he is doing better, but he still can not return to work (he does heavy manual labor at work) so financially things are really bad for him. He seems to be one of those kids that wears a sign on his back - "hurt me please - my life is not sucky enough yet". The worries never go away with our kids do they! They just seem to multiply as their families grow.
As for me - as you can guess - all of this has hyped my symtoms a bit. The shaking makes me feel like a nervous wreck even when I am calm. I have been off kilter with my exercise schedule and of course eating poorly (a lot of emotional sugar loaded junk eating). This week of getting back on a sort of reg. schedule is helping calm the tremors down a bit. I have also been having more foot cramps lately so I am hoping getting back on track with the exercise will help with those too. I had one on my right side last week, which is a first. (it is not progressing, it is not progressing, it is not....) If I say it over and over again, does it make it true??? Well - it works for politicians!!!
I have another PPMI study appointment this week. My husband, who was gently pursuaded to also be a guinie pig, and I will be having side be side lumbar punctures. Doesn't that sound romantic?? lol At our age - it is!!!! With this procesdure I will meet the goal of staying med free for the PPMI tests wanted. So after this appt I will begin to travel the meds road. I am so excited! NOT!!!!!!!! Actually, I am dreading this phase and if I could figure out a way to not do meds - I would go that route instead. But I see no alternatives at this point. ( sighs and deep breaths) Not to worry though - my doctor has decided to help me delay my anxiousness on the med situation. I can not get an appointment with him and am being told they are not opening his schedule again until sometime in July and they will call me when they open it up. HHMMPPff... wonder what would happen if I really needed to see him??? Oh well - I live with the symptoms as is for awhile longer and quit worrying about the meds road until then.
Enough of my update. Now I can get busy with reading whats been going on with you all.
Hugs to everyone here!
Replies
Good to hear your life is getting somewhat back to normal. Yes, the stress and sudden loss of a routine can sure play havic on the Parkinsons symptoms. Getting back into that daily routine including exercise and walks does indeed help. Unfortunately, no matter how we dislike the need for drugs to fight the symptoms, in time they do become necessary. Be sure to research all you can the pro\'s and con\'s of the med prescribed when that time comes. Hugs, Dan
CM, so glad you are back.. glad the funeral went well and you are right she is in a good place now... I hope things start getting better for your son i\'ll keep him in my prayers... it does seem like you never stop worrying about your kids no matter how old they are.. I too have been off the exercise program and eating junk junk junk... so lets jump back in this together!!!
You may be on to a new trend.... Romantic lumbar punctures for two... strange things catch on these days!!!! hahaha
and yessss just stop worrying about the med thing for a while give yourself time to regroup, recoup, eat well and exercise (i\'m telling myself this at the same time)
Once again i am soooooo glad you are back... hope we get to talk soon!!!
hugs,
paula
CM, so glad you are back.. glad the funeral went well and you are right she is in a good place now... I hope things start getting better for your son i\'ll keep him in my prayers... it does seem like you never stop worrying about your kids no matter how old they are.. I too have been off the exercise program and eating junk junk junk... so lets jump back in this together!!!
You may be on to a new trend.... Romantic lumbar punctures for two... strange things catch on these days!!!! hahaha
and yessss just stop worrying about the med thing for a while give yourself time to regroup, recoup, eat well and exercise (i\'m telling myself this at the same time)
Once again i am soooooo glad you are back... hope we get to talk soon!!!
hugs,
paula