Hot Humid Summer

Hi  Everyone,  I hope everyone is ok this day.  Sure has been hot in the South of the US. our temp gauge showed 106 on the patio yesterday and so sticky.  We had a cookout planned for some good friends and had put a lot of work into getting everything nice and ready.  Well I looked out and our neighbor was spreading chicken manure on the field over from the house.  My Steve came in the house mad as h___ and said I told you I wanted to sell out and move!!  We have 8 acres and you would think after 42 years we would get used to the smell of chicken crap!! hehe  It rarely smells unless they spread it on the pastures for fertilizer.   I called our neighbor who is a good friend and he said he would wait till later. Well I got Steve calmed down and the dinner party went great. Just some good friends, good food and a good time!
He has his taste right now. He will lose it for about  2 weeks of the month so he makes up for it when he can taste!  We went out to eat the other week at a local steak house and he just closed his eyes smiling and was savoring the taste. I looked around to see who was watching him and wondering what he was doing? LOL.  No really it gives me pleasure to see him enjoy his food like that.  I have not been in the situation of not knowing the taste of food so don't think I am making fun of him.  As a caregiver you feel some of the same things they go thru. 
Steve is actually out with friends today going to a car museum. He will not be back till late and I am so grateful that he feels like going. He started Sutent back last Sunday and the feeling will not last until about another 10 days.. I send you all my love and prayers.  Wanda      (by the way he is on round 41)  thank you Jesus!!!

Replies

deleted_user
deleted_user

Hi Wanda
Being new to all this I wonder if the missing taste is a result of chemo or from the Cancer itself. Since my husband has not started treatment yet I don\'t know. I do know that since his nephrectomy he says everything tastes like metallic cabbage-which he doesn\'t care for-without the metal I mean! He goes for his referral to oncologist Monday.
BTW it is only 95 here in Oregon! Cool compared to your weather!
With hugs, Angora
pieper
pieper

Totally understand about the taste thing, Brian always tries to eat things he enjoys during his break and I have no problem cooking. But when he goes back on Sutent then it makes cooking difficult. We have been having very hot weather lately but he has still been able to work as a farmer. His boss and neighbors have been great about checking on him or making him rest. That is awesome Steve is doing good on round 41, I was worried because I read somewhere that people usually only take it for about a year before it stops working so there is hope. Julie
wanda61
wanda61

Steve losing his taste is a direct side effect of the Sutent. He can be off about a week and it comes back, thank God, eating is one of the pleasures of life. I don\'t know about the metallic taste Angora. I definitly would ask the doctor, does he have him on antibodics? That will leave a metallic taste. Hope you get it figured out. For example Steve loves my biscuits but when on Sutent he says they have no taste, go figure. I have given him a canned biscuit and he can taste that! He used to never like those!! By the way Julie Steve and I grew up on farms. His dad was a dairy farmer, horrible work, seems like it never ended, all year round. I have a lot of respect for farmers!
perplexed46
perplexed46

I\'m glad that your husband felt good enough to go out with his friends, It is good for him and gives you some space! We live in NC too, and it sure has been hot, sometimes feels hotter than Florida!

Have a great week-end!
Love & hugs, Lois
deleted_user
deleted_user

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deleted_user
deleted_user

Hi wanda

it is amazing how sutent can work for some people and they may tolerate it while others can not tolerate it at all. I never thought abput eating food with no taste, that is so wierd to think about. I guess it is atestimony of how much your husband wants to live and be with a wonderful wife like you. Hope you all have a wonderful log and productive days togehter! Anthony
msgrace
msgrace

Hi Wanda,
It truly is wonderful that Steve is feeling well enough to get out and do the things he enjoys. Such a blessing!
Hugs, Ingrid
deleted_user
deleted_user

Wanda...I am so happy your husband is feeling better...and able to enjoy food and take off with friends for the day....please savory these times..hugs Ellen
LSMS
LSMS

Dear Wanda....thank you for the vivid explination of what country smells are like! I\'ll be sure to bring a cloths pin for my nose if I ever come out to visit you!
I am happy to hear how well Steve is doing. As I\'ve said before, his (and your) journey inspires me. I hope you both thrive for a long time.

Love, Linda
meriel
meriel

Lovely to hear how well Steve is doing, Wanda, and how much fun the pair of you continue to have. You\'re a shining example of \'seize the day\'!
with love, Meriel
GlorS
GlorS

Hi Wanda
YOu are so funny - chicken s--t, yikes. Does Steve lose his smell too when the taste buds are dulled? With those farm smells, he may be better off.
So glad for you guys that he is staying steady. How I wish and How I pray that we can follow that path too. Tomorrow we go to Sloan, and it is so hard to sit in that waiting room..... You are lucky that they give you the results right away - eliminating the wait is a blessing. Talk to you soon.
gloria