Hello Friends

I have been off site for over a year.  A lot has been going on in my life. MG is stable, still no fun.  I think i stumble more, so i use a walker for long walks.  But, around home I am a wall walker, kinda like a mouse.. holding the wall up as I walk.

November 1 last year I had open heart surgery to replace my mitral and aortic valves.  They decided while in there to take my thymus gland while they had my chest open.  The heart surgery it self went great.  However, they could not get me off the ventilator for 6 days (news to me, i thought it was day one when i woke up) on day 8 I had a massive stomach bleed from the heparin shots after surgery that is required. (who knew i had undignoised ulcers?)  I came very close to dying Nov 8, 2018, my bp had dropped 60/40 before they figured out i was bleeding and started transfusions.. oh, of course by now I am unconcious again and back on ventilator for another 4 days.  After 20 days in ICU my muscles were so weak i had to learn to walk again. I guess because of MG.  

All of the above is the bad stuff.  I can now that my heart is working and suppling Oxygen to my lungs.. I can breath.  I am getting stronger.  Muscle strenth not  back to where it was before surgery, but i am doing PT and am very determined old bag.

Don't know if any of my friends from before are still active,  just know if I can at 77 pull through all this.. We all have a different path.  Stay positive and be Blessed.

Dee