Hearing
Well tonight I had a heated discussion with Brenda about my hearing.She seems to be getting madder and mader every time I can`t hear her tell me something when she knows that I have trouble hearing and she insist`s that she is not turnning away from me when she say`s something but I have noticed that she does it just to see if I can hear her.Tonight she said something about me getting a hearing aid AGIAN.We have gone over this time and time agian about not being able to affored one and they won`t let us pay for one on credit(I had already tried to get one that way).And right now we can`t and I won`t let us put out extra money for it,we are already strapped for the money that we have at this time. She brought it up that I need to just suck it up and go get one because she thinks that I am missing out on a lot by not being able to hear all of some of the conversations that have gone on in the past about my doctors appointments and even just daily conversations. I think that I know better than she does what I am missing out on but I would rather put food on the table and a roof over our heads than to be left out on some conversations.YES I AM GETTING TIRED OF IT!!!!! BUT WHAT THE HECK AM I SUPPOSED TO DO ABOUT IT. We can`t afford it so it is just going to have to wait. I don`t know what she expects from me,I know it is frustrating for her to have to tell me some of the things that I miss, But dosen`t she understand that certian things come before our personal needs. Like paying the bills on time and getting things done that we start to do.I commend her for wanting to go back to school and getting through all of the begining Algebra classes that are required for any degree,but this is the secind time that she has over extended herself and had to drop a class and this time she got a student loan without talking it over with me and now we are having to pay it back. I don`t know maybe I should just sit at home and not do anything anymore. I thought that maybe I should try and get a part time job or try one of those work at home programs but all of the part time jobs watn you to work at least 30 hours and that is not an option for me.If I get paid over $400 a month then I am in trouble with SSDI,and then there are my ristrictions that have to be complied with or I am in trouble agian for violating them.Damned if I do and Damned if I don`t. And now with the economy in as bad of shape as it is no one is really even hiring anyone in the first place. I know that part of the problem is that I would like to work doing something just because that Is the way that I am and the way I feel about me not working and not being able to support us in the way that I have been used to is driving me MAD. YES I KNOW I PROBABLY NEED TO GO SEE A SHRINK, BUT THAT COST MONEY BY THE BUCKETS THAT WE DON`T HAVE EITHER!!!!!!!!!!UUUUUUUGGHGGI just wish I had all of the answers,and on top of all of this my computer is running so slow that I could turn it on and twenty minutes later it is still not connected to the internet and when I add something to some post on here I go back later to check on it and it has been deleted,who the heck is responsible for doing that.Isn`t that censorship and isn`t that not allowed.I mean what I had posted wasn`t any thing big but I did have some questions that I wanted to ask and I didn`t think that any of it was bad in any way.Things like this are some of the reasons that I am seriously considering getting off of DS. I mean if we can`t ask questions or try and give advice then why are we here.I think that I better get off of here before they send the internet Police after me for writting something that I shouldn`t have even thought about.Sorry if I upset anyone but ...................
Replies
I\'m sorry to hear that ur having hearing troubles. I cant imagine how that must make u feel. I do agree that there are other things more important that u have to do with ur $ like, the mortgage & groceries and such, i was just wondering maybe u could get some kind of assistance to help u with a hearing aid. When i was dx with thyroid cancer the nills from the dr were draining me so i got on medicaid, and they help me out with my dr bills & medicine. I\'ll be praying for u and i hope that things get better for u. Take care!
Ashley
monte, i am so sorry that things are so stressful for you right now. hang in there tho. you are in my prayers.
hugs.
Oh Monte,
You have my e-mail address and can vent all you want! You know I\'ll be honest with you. My computer does the same thing! Frustrating, isn\'t it. Brenda\'s right. You do need to hear. Your frustrated with your diagnosis and the strain it\'s put on your lives. You know, you don\'t want to leave DS. We need you. Stop giving energy to the past.
It is what it is. There\'s alot of passion in you. Channel that into your future. Don\'t you want to hear the beautifal music your making on the piano? It\'s ok. Your heart is in the right place. Time to be creative. I believe your financial struggles are a common problem with those of us with this diagnosis. I\'m asking for help from all in this group to give Monte some advise that can get him the hearing aid he needs. I know their all different types. Some more expensive than others. I too deal with hearing issues. Sometime I have to stare at a persons mouth to undrestand what their saying. Also, I\'ve noticed I\'m not a good judge of how quite or loud I am. My husband hasn\'t made an issue of it yet, but he may in the future. Don\'t be frustrated with Brenda for telling you what you need. She cares. I know you don\'t want to have (one more thing) to deal with. It\'s ok if she\'s trying to help you. Take care of yourself. I will look into hearing apperatices, ok. Might get one for myself.
Monte, It sounds like you are getting the same grief over your hearing that I am about my memory? There is no gadget, or surgery, or counseling that can help me! My hubby tries to be kind about it but I can\'t remember anything!I had new MRI\'s done yesterday and I have an appointment with my neurologist to see if I have yet another disc ruptured in my neck. This would be #6 I think between my lumbar and thoracic spine! Add my brain damage to that (courtesy of my ex!) and I am a mess!!
Having those around you getting angry or frustrated just adds to the misery and humiliation! I am having a \"Pet Scan\" soon to see if my brain tumor is growing! It is inoperable so I don\'t know why I need to know if it is growing or not!!! Won\'t change the outcome!!! Good luck, and hang in there!! Your wife need to learn some compassion and maybe put herself in your shoes for a day or two! AND!!! Monte, Have you considered that your wife may be deleting your questions? I don\'t think anyone on the receiving side can delete them except from themselves if they choose!! They can\'t change your post from this side!!! Good Luck!! Do some questioning and investigating!!! Good Luck, QUtee \"n\" Texas
Monte, Try to keep your head held high. My Dad loss his vision, hearing and both legs within a year at the age of 60. Try to get some kind of goverment asst. If you are a Vet. the VA will pay for one.
I ask my Dad ( he wears a hearing aid) one day what he misses the most and he said his hearing and he still can\'t hear that well with one. He is deaf without it. So if a hearing aide will give you your hearing back. I think you should try. Brenda is trying to help. Boy do I known about living pay check to pay check right now. With all the meds I have to take right now (350.00) a month with insurance. Someway you will find a way. Good Luck, Peach