Had to follow my own advice
OK So as many of you know I just got out of the hospital with a total knee revision. Not the greatest experience to say the least and not totally the hospitals or Doctors faults. Everything started off good and I was healing right long with the exception I couldn't get a handle on my pain. So instead of just giving me 2-7.5/325 Hydrocodone every 4 hours they added a 1 mg shot of dilautid. That should have put me in happy land but unfortunately it had a weird effect on my breathing. LOL I was afraid to go to sleep because I had to remind myself to breathe. Weird, weird. They cut my Dilautid dose in half and it didn't do much good. OK in defense of myself who was pretty well drugged at this time, I did not take a proactive stance in my care and just let the nurses slide instead of insisting they give the surgeon a call and change my pain medications. I finally did come to my senses and realized the nurses had not done any of the things I had requested, Like make sure a Hospitalist was assigned to my case, and when they finally did it was the surgeon who took the God Stance and refused to do what I asked. Surgeons are good but they aren't always worth a crap at regular medical practice and managing medications. Luckily I am still alive to file a formal complaint against this surgeon. I had requested a hospitalist to follow my medications since my regular MD was not a practicing physician at this particular hospital. I made the mistake of assuming things were being carried out correctly. Well I was finally discharged on Monday to come home. On discharge I was given a few prescriptions that I needed to pick up at the pharmacy on the way home. When hubby stopped and brought the meds back to the car is when I found out the Surgeon had only been giving me 40 mg of Lovenox twice a day to cover me until my INR came back to within therapeutic range. OK here is where a bit of an explanation is called for. My therapeutic PT/INR levels are 2.3-3.5, when I get below 2.5 I tend to throw clots in my lungs, thats why I take 90 mg of lovenox twice a day until I am therapeutic. OK I also find out the surgeon has not only under prescribed my lovenox dosage but also has only given me 2 days worth and discontinued my lovenox and just put me back on Coumadin. When I tried calling him he was nowhere to be found. When I got one of the doctors to call me back who was on call for this particular doctor, he was appalled at what this doctor had done especially knowing my clotting history. Like I said i will defend myself by saying I was extremely drugged out and couldn't hardly talk let alone be pro-active in my health care. We did call the hospital and talked to the charge nurse and she was amazed I was able to think as well as I was considering the amount of pain killers I was on. My other complaint to that particular nurse was the nurse who had been taking care of me did not give my husband discharge instructions. When hubby asked about discharge instructions she merely said she had talked them over with me and I understood what needed to be done. Honestly I don't remember her talking to me about any of it. I seriously was that drugged. I guess all I'm doing here is venting a little and hoping some of you might take my experiences and think about them if you are ever in the hospital, so you can make sure your spouse, parent, partner whatever is pro-active for you. We were not prepared for the lack of professionalism we received at the hospital I work at. I can only imagine what kind of treatment a non employee receives.
Replies
Ferr, How are you doing? Now that you have taken matters in your own hands...
Then they wonder why DVT-PE happens so RAMPANTLY in the care of doctors. This sucks.
Remember last year when the Surgeon General call to arms against DVT-PE in hospitals?
I would send him a rapport of what just happened to YOU to him (Surgeon General).
And imagine the care for people who are NOT pro-active...
You knew and told them what to do and still, it happens.
Hope you have your INR back on track and you are feeling better.
Never mind yur rollerskates just now.
Be well ((((((((Ferr)))))))).
D
http://www.surgeongeneral.gov/index.html
How the years go by fast, yes the call to arms against DVT-PE was in 2008, my bad...
This is outrageous Ferr. When I had my GB out, my internist coordinated pre and post lovenox, including sending the RX to the pharmacy, not the surgeon. My surgeon deferred to my doc, which I think is the right call. The only thing my Internist wanted my surgeon to determine was whether I went back on Lovenox the same day of the surgery or the following morning, and that\'s because the surgeon would determine if there was a bleeding risk post surgery.
When I was discharged, they walked through my discharge papers verbally, with all the instructions and follow up info, and the gave me the papers. They don\'t even talk to you alone after a colonoscopy because they know you ain\'t right in the head at that point. Why would they be so careless after a major surgery???
Also, with my pain med prescriptions, they gave my husband the RX the day of the surgery, so he could fill it at the hospital pharmacy before I left. That way, we wouldn\'t have to fart around with that once I was home.
You really do have to be on it 100%. When my nurses were giving me pain meds, and warfarin, I asked them, ok tell me again what you\'re giving me and how much warfarin. The nurse lit up and said, I was so smart to ask. Patience never ask. I said that\'s from my PE experience, because if I didn\'t stay on top of stuff , the medical community would probably have killed me by now.
My husband used to laugh at how anal I am about everything, but he sees now, given the last couple of years, that I have to be. Mistakes and laziness are prevalent in any line of work, including the medical field.
Hope you\'re doing ok!
Oh Ferr - you\'re the one we all look up to because you\'re so knowledgeable and always on top of everything! If the doctors can get it so wrong for you - even though you work at the same hospital - then what chance do the rest of us have? Thanks for this reminder to us to always look out for ourselves and never blindly trust the medics!!!
So glad that despite your treatment you\'re now on the road to recovery. Get well soon - hugs from Sandie xxx
Oooh Ferr, I am so sorry that you had such a bad experience!!! It is unbelievable that you would have to go through all of that with ALL of the prep work that you did before hand. It is amazing how many medical professionals don\'t understand what we go through being survivors of DVT/PE\'s. I am so glad that you are ok. Take your time getting well and I am glad that you finally got things straightened out.
Ferr, sorry to hear about this. One always hopes that the medical staff overseeing you take all appropriate prophylaxis to ensure you don\'t have a clotting episode. As I learned first hand from my hip replacement, the orthopedic surgeon would do nothing for anticoagulation, I had to arrange that separately through the hospitals hemotology department. This explains why the other patients who had hip and knee replacement were only on aspirin.
I would definitely file a complaint with the hospital.
Well well soon!!!
Feel better, Ferr!!
Anybody hear from Ferr since this thread?
Hope things are improving...
Denis
Hope that you\'re feeling better by now and are therapeutic. When I had my clots and was initially admitted, I called my mom (who lived 3 hrs away) and she stayed with me the three days I was in the hospital. Even when you\'re not on painkillers, you need a second person to collect and absorb all the information being thrown at you.