Graves disease my first entry

Hi everyone! I have wanted to join a support group like this for a while so here I am :) I was first diagnosed with graves disease in may 2011 Andrew I noticed my eyes had become very puffy and blurry so u want to the opticians who sent me to the hospital where I was told I have thyroid eye disease,my doctor had already sent my for blood tests to check my thyroid the week before so this was all adding up,my bloods came back that I was overactive and my doc put me on carbimozole,that night before I had picked up my medication my shakes were so bad my whole body was shaking I couldnt walk up and down the stairs and my head felt like it was going to explode so I went to A&E who put me on beta blockers straight away,within an hour my headache was gone and the shakes had stopped,the doc told me the beta blockers were only stopping the symptoms and the thyroid still needs to be sorted,anyway I was put onto an endocrinologist who sorted out my medication and told my this was due to graves disease an autoimmune disorder,I had many things wrong with me for years that always came down to my immune system so this wasn't a surprise to me or my partner who had always said to me I should write things down as I get them cause I always seemed to be ill in 2009 I suffered from alopeica which really upset me and found out this was also an autoimmune problem later that year I developed coccydynia (pain in the tail bone) which I'm not sure if this is autoimmune related but its damn sore I know that! Anyway so now my eyes are popping out and my thyroid is going mad! After being on the meds for only a month my thyroid turned extremely underactive which has intrigued my endocrinologist as this usually takes about a year,he said my thyroid Is very small then he took me off my meds altogether to see what happens I am going to see him on Monday for the outcome but I fear it is on the rise again as I have the tremors back and I'm struggling again to get up the stairs,I didn't realise it could affect my legs till I read that some of u are having the same problem i thought I was starting to get MS or something so that was a releif to read :). I am also waiting to hear what a surgeon is going to do about taking out my coccyx and I hope he will as I'm no longer aloud the injections for it,then I read they don't like to operate until the thyroid I'd stable, Ohhhh I feel so helpless and hate being in pain 24/7 I just hope it's good news on Monday at least that would be something!! Ok iv finished moaning now il update when I know more Thanks for reading :)