Glad I made that doctors apt don't ignore pain
Well got to the doctors explained I was fine now but over the weekend had a dull pain in my chest. Next thing doc did ecg saw t wave inversions on it and was put in hospital . I had the RHC and LHC and a angiogram . Next weds I go to the specialist hospital . They confirmed my mean pressure at rest is 30mmhg and wedge pressure is 6 . I can just about make it to the bathroom and back but sob and exhausted . I'm on anticoagulants dissolve able aspirin ,statins and the usual hydroxychloraquinine and esomeprazole . They confirmed PAH on right side but I also have left side heart problems apparently lesions and narrowing they can't put a stent in as it would be too dangerous .
I'd like to say I'm living in the moment and taking things as they come but I'm not . There are times I'm panicking about my mortality . What I read is not good and I am trying to gauge how much time I have left of the 2.8 years of untreated time prognosis . The PAH forum has no one posting I have no one to compare time symptoms treatments with. At night time it's the lonliest place in the world when darkness pervades your thoughts .
My brother is coming over from Ireland today we were suppose to be going for a family meal . I cant see them letting me out of here I'm hooked to monitors etc.
I'd like to say I'm living in the moment and taking things as they come but I'm not . There are times I'm panicking about my mortality . What I read is not good and I am trying to gauge how much time I have left of the 2.8 years of untreated time prognosis . The PAH forum has no one posting I have no one to compare time symptoms treatments with. At night time it's the lonliest place in the world when darkness pervades your thoughts .
My brother is coming over from Ireland today we were suppose to be going for a family meal . I cant see them letting me out of here I'm hooked to monitors etc.
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