from the beginning.

first week in may in 2013. I lost my competition horse due to kidney failure.  I found out if he had had regular yearly bloodwork. I may have found out about it earlier and he might have had some extra time, and I could have done some things differently.  In his honor, I decided to get a full range of bloodwork, to make sure I wasn't in the same boat.  To my terrible dismay, I found out I had this terrible disease.  In addition to losing my best friend, who was literally my whole life I now found out I am also inflicted with something terrible.  I had determined the only way I could have contracted this was some risky behavior in a very short period of time in my late teens.  After investigating all aspects of what I was facing on the internet. I found the best doctor in NYPrest. hospital.  I made the long train ride there, and found out I wasn't in as bad shape as I thought. She suggested I wait for new medications, but it was going to be a while.  I looked into all aspects of the new treatments on the horizon and followed all the ion1,2 and 3 trials.  I went to NY every 3 months for bloodwork.  In June '14 I found my super dooper doctor resigned to take care of her baby and I had to see another doctor.  Knowing the time was nearing for the cure, I was apprehensive about dealing with a new doctor.  I met with the new doc and she seemed ok and I expressed my intentions of immediately getting the drug as soon as it was available.  So my next quarterly appointment was scheduled 2 weeks after the anticipated approval date of the new drug.  I got a call from the hospital trying to assign a different doctor, I begged to keep the new one I just talked with, as I had worked so hard to establish a doctor/patient relationship so that when the drug was approved, I would be ready to go.