Four years on...
Its been a whopping four years since I was last on this site! I stopped coming on here part way through uni because I couldn't afford to buy a laptop.
I'd like to say a lot has changed since then but it hasn't really! Four years on and STILL no official diagnosis. My doctor has said the words this looks very much like lupus but part of me still wonders if anyone really believes I am ill. If I wasn't so tired when am I awake I might even start to think that I had dreamed the whole thing!
I had been feeling a lot better until about 3 weeks ago but suddenly its all kicked off again and I am feeling that tiredness. I am not even sure how it is possible to be this tired or how someone can sleep so much and not ever feel any better for it.The lupus unit wrote to me to day following my appointment with them saying I need further testing as their was a lot of protein showing up in my urine. I am not quiet sure what that means, but maybe that's partly why I am so tired.
I'd like to say a lot has changed since then but it hasn't really! Four years on and STILL no official diagnosis. My doctor has said the words this looks very much like lupus but part of me still wonders if anyone really believes I am ill. If I wasn't so tired when am I awake I might even start to think that I had dreamed the whole thing!
I had been feeling a lot better until about 3 weeks ago but suddenly its all kicked off again and I am feeling that tiredness. I am not even sure how it is possible to be this tired or how someone can sleep so much and not ever feel any better for it.The lupus unit wrote to me to day following my appointment with them saying I need further testing as their was a lot of protein showing up in my urine. I am not quiet sure what that means, but maybe that's partly why I am so tired.
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