First time support group

I just wanted to say hello and join a support group to deal with my two diseases. I have been diagnosed with MCTD and Fibromyalgia. It's nice to talk to my grandmother who has MCTD and my mom and best friend who both have lupus. However, NO ONE else understands. I feel like they don't believe me. If I am tired and sleep a lot people say you are sleeping too much that is your problem. They don't get it. Or if I am sick with a flu and it lasts longer and worse than anyone else they think I am milking it. To be honest, lately I haven't even felt like doing ANYTHING. I am always tired and have lost all energy. That is it for now.

Replies

Catalyzt
Catalyzt

I understand. The holidays really knocked the crap out of me, I have a cold that is lingering forever, and it feels like I have no energy and can\'t get anything done. I have to remind myself that this thing follows a cycle, and I will probably feel better in a few days-- I bet you will, too.
jlh2375
jlh2375

Yeah, I just want to feel good again. How do you become friends on this site? I am new so I don\'t know how to add you.