First Time
It's my first time writing in the journal. I came to this site because I needed some support and maybe to meet some people like me. I had a Traumatic Brain Injury when I was 4 years old. I was in my living room and playing with a metal rod. I tripped over a blanket and the metal rod when through my orbital bone in my head and over to the right side of my brain. I was in a coma for 3 weeks and now I have a shunt. The lasting effects of the TBI are that I have no memory of my childhood and everytime I go in for another surgery on my brain I lose another thing of my past. So I'm always wondering if I have a surgery coming up is this the time I'm going to never remember anyone. It's a thing I don't like to think about to much but sometimes I can't help myself.
I have had migraines and headaches ever since I got the first revision of my shunt and to this day nothing has worked for me. I'm trying new things that my doctors tell me to try but so far nothing seems to be working.
I do have chronic pain that I'm trying to deal with. Since I have had a shunt I've had to have many revisions on it so that has lead to me getting chronic right sided stomach and back pain because that's where the shunt comes down to. My doctors are trying to figure out why this is happening to me but I've had Chronic stomach and back pain for 3 years and they are no were near figuring it out. It seems that everyday my pain just gets worse and worse. I don't know if I can stand it much longer. My sister in law actually told me about this site and I thought that it was a nice idea why not see if it actually helps.
I have had migraines and headaches ever since I got the first revision of my shunt and to this day nothing has worked for me. I'm trying new things that my doctors tell me to try but so far nothing seems to be working.
I do have chronic pain that I'm trying to deal with. Since I have had a shunt I've had to have many revisions on it so that has lead to me getting chronic right sided stomach and back pain because that's where the shunt comes down to. My doctors are trying to figure out why this is happening to me but I've had Chronic stomach and back pain for 3 years and they are no were near figuring it out. It seems that everyday my pain just gets worse and worse. I don't know if I can stand it much longer. My sister in law actually told me about this site and I thought that it was a nice idea why not see if it actually helps.
Replies
Oh Girl!!!! WELCOME!!!!!!!! Sorry to have to meet you this way, but welcome welcome!! I get brain surgeries too. I have had 3 brain surgeries/skull surgeries in the past 11 months. I know I have one more coming up to get a plate in my head. This site is soooo cool. I love it. I feel at home and normal here since we are all broken in different ways! We understand. ANd we vent and we cheer each other on! I am so glad you found it here!!!!
I know right...I can finally feel like I have a place were I can be myself without anybody staring and judging me. There was no site like this when I had my accident when I was 4 and growing up I just felt so alone. Me against the world in some ways...you know. Anyways thank you for the warm welcome!!!