First entry October 30 2013
I'm going to try journaling on here to see if I can keep it up. I would like to have a record of how MG and my other issues affect me. Maybe it will hep to pinpoint things that make me feel better or worse so that I can make adjustments accordingly.
I started this journey in June of 2008. I was a healthy, very active 46 year old father, husband and pest control technician. I always jumped straight out of bed in the morning and never slowed down until bed time. I was always outdoors working in and around the yard, playing with our 2 boxers, fishing, camping, kayaking, shooting or anything else that kept me active outdoors.
I started getting a cold like I always do when seasons change and it turned into the usual sinus infection. I went to the doctor as usual and was prescribed an antibiotic for the infection. I went through that prescription but wasn't getting better and went back for another visit. He said I just had a bad infection and gave me more meds. I few days later I was at work and started seeing spots and getting dizzy. My wife took me to the Emergency room where they again said that I had a sinus infection and sent me home. That following Sunday we went to church and out to lunch afterward. As we were finishing our meal I told Debbie that I felt odd and thought we should go. I asked her to pay the bill and I would go on to the car. When we got home I could not open the car door. My right arm would not work. she opened the door and helped me out but my right leg didn't work right either. I sat down on the sofa as she went about feeding the dogs. I tried to say I need to go to the hospital but the words would not come out right. She heard hospital and put it all together and we took off for the 30 minute ride to the ER. They finally figured out something more than a sinus infection was wrong. It took what seemed like forever but one doctor said he thought it might be meningitis. He ordered a spinal tap which was the worst pain ever. The test came back positive for meningitis but since I was on so many antibiotic they could not tell if it was viral or bacterial so they quarantined me just in case. after about a year and several more spinal taps to relieve the pressure the Neurologist said there was nothing more to do. He said just wait it out, sometimes it takes a couple years to recover. The years went by and many doctors and hospitals and I finally went to my current Neuro. who figured out the MG/Sjogrens and started me on Mestonin.
As of now the Mestonin is helping some with the muscle pain and the cooler weather is helping with the fatigue. I still have a lot of joint pain and am again resigning my position at work because I am unable to do my job. Today I feel pretty good for the second day in a row. We are under high pressure with high temps around 70. The work load has been low this week and the stress level low at work as well.
That's way more than I can type without serious pain so I have to stop. It's by far not the complete story but it's a good start.
hopefully I will keep this us.
I started this journey in June of 2008. I was a healthy, very active 46 year old father, husband and pest control technician. I always jumped straight out of bed in the morning and never slowed down until bed time. I was always outdoors working in and around the yard, playing with our 2 boxers, fishing, camping, kayaking, shooting or anything else that kept me active outdoors.
I started getting a cold like I always do when seasons change and it turned into the usual sinus infection. I went to the doctor as usual and was prescribed an antibiotic for the infection. I went through that prescription but wasn't getting better and went back for another visit. He said I just had a bad infection and gave me more meds. I few days later I was at work and started seeing spots and getting dizzy. My wife took me to the Emergency room where they again said that I had a sinus infection and sent me home. That following Sunday we went to church and out to lunch afterward. As we were finishing our meal I told Debbie that I felt odd and thought we should go. I asked her to pay the bill and I would go on to the car. When we got home I could not open the car door. My right arm would not work. she opened the door and helped me out but my right leg didn't work right either. I sat down on the sofa as she went about feeding the dogs. I tried to say I need to go to the hospital but the words would not come out right. She heard hospital and put it all together and we took off for the 30 minute ride to the ER. They finally figured out something more than a sinus infection was wrong. It took what seemed like forever but one doctor said he thought it might be meningitis. He ordered a spinal tap which was the worst pain ever. The test came back positive for meningitis but since I was on so many antibiotic they could not tell if it was viral or bacterial so they quarantined me just in case. after about a year and several more spinal taps to relieve the pressure the Neurologist said there was nothing more to do. He said just wait it out, sometimes it takes a couple years to recover. The years went by and many doctors and hospitals and I finally went to my current Neuro. who figured out the MG/Sjogrens and started me on Mestonin.
As of now the Mestonin is helping some with the muscle pain and the cooler weather is helping with the fatigue. I still have a lot of joint pain and am again resigning my position at work because I am unable to do my job. Today I feel pretty good for the second day in a row. We are under high pressure with high temps around 70. The work load has been low this week and the stress level low at work as well.
That's way more than I can type without serious pain so I have to stop. It's by far not the complete story but it's a good start.
hopefully I will keep this us.
Replies
It\'s always nice to hear someone else\'s story, although it makes me sad to learn what MG has taken from you. I will look forward to the next part. I have had to reference my journal a couple of times, plus it helps to vent if you need to. Friends, Barbel
Thank you for sharing. I\'m so sorry it took so much time to get diagnosed, an all too common story. I\'ve found journalling really helps me sort things out in my own mind. Plus,it\'s nice to have the DS family support (goes both ways). One thing I\'ve read about MG, is that over-exposure to pesticides is believed to be a trigger for MG. Along with viruses, hormone changes, and thymomas (me). I couldn\'t work at first,but I am now. Ivig has given me some of my life back. I wish you better days ahead.
Be well,