Feliz Cinco de Mayo

Exhausted as usual but feel I made progress today. Woke up last night at 1am feeling as if someone had screamed my name to get up. It was weird, but made a trip to bathroom and back. Finally fell back asleep at 2:30ish. Went to former dr with great connections. I now have an appt with one of the two names of dr I was given by various mg friends (thank you all) on Monday at 9:20 am!  Yes, Monday, as in four days from now Monday!  Now I need to get my paperwork in order so easy for new dr to see how I ended up here. Project for tomorrow. Upped cellcept today too twice a day. Hope this works out and I don't have any adverse side effects. Crossing my fingers. Had a nap but traveling and seeing dr was exhausting. Found I still had tape scum I had missed from last midline IV from hospital stay. I really do shower. Well its tacos for supper tonight because we can't think of anything else. 

Replies

jessicadrummond
jessicadrummond

Good to hear! Are you able to tolerate any pyrodistigmine yet? That will really help with the weakness. I learned that the Cellcept keeps your own immune system in check so it\'s not attacking the muscle junctions. The pyrodistigmine allows the muscles to work. So, you won\'t feel so weak if you can get some in your system regularly!