FEELING AWFUL

I almost don't where or how to begin today.

I feel, I don't know, like I've been thru the mill, hit by a semi etc. etc.

It would be so much better if lupus flares had exact symptoms all across the board because then I'd know what's going on at least & could deal with it accordingly.

I just can't seem to pull myself together. If I could sleep 20 hrs & just have to have a 4 hr day I might be OK. My cold/bug is not an issue anymore but I wonder if this could be an after affect of it, hmmm.

Part of me does wonder abt something else though. I've tried for a few months now to see how I'd do not taking my methotrexate injection & things seemed OK. I did not go thru any major regressions of any kind. So feeling guilty I took my injection last Sunday & all this week just feel like $%^%^&^(), warmed over to boot.

Sure makes you wonder abt the drugs they give us to supposedly "help us fight our Lupus".

Well to one friend that I know will have taken the time to read this & maybe give some input, I thank you fr my heart as I know your life is a handful at the best of times.

Replies

deleted_user
deleted_user

I\'m so sorry you are going through this. Sometimes it does seems so hard!!!!!! If you need me--you know where I am.
Try to have a better day>
Terri
deleted_user
deleted_user

I can see why you are wondering...
= (
how long have you been off of mtx?
I didn\'t have any symptoms for 5-6 weeks. Except that I had *more* energy when I was off of it. Then at week 6, the aches began back up.

I know how frustrating it is not to know what\'s going on, not to know which doc to see about it and to boot, not have the energy to start something \"new\" like a new trip to the doc and so on.

my heart goes out to you.
hugs and prayers, m
deleted_user
deleted_user

I am so sorry your not feeling well, when I am sick and having a hard time breathing (all the time now) I call on the name of Jesus and it comforts me just knowing that just the mention of His name brings Him closer. I wish I had a magic pill i would send it to you my sweetriend but all I have are prayers and your on the top of that list. Love you, frieda xxxoo